February 5th, 2007 02:52 AM #1Unregistered Guest
Lupus /Hep C
In 1996 I was finally diagnosed with Lupus erythematosus, and It took years to diagnose it. I did have a second opinion from a prominent doctor in NYC. The medications I was taking got me so sick. the last and worse was Methotrexate. I gave myself a FDA pharmacy medication break and actually I felt better for a little while.
Five years ago my lab work said I had Hep C. Since then I have had many blood test and a couple of major surgeries. Hep C was gone from the diagnosis and the Lupus diagnosis was back. Two years ago I had to have four vertebrae fused. I have degenative disk disease. I walk with a cane and I'm usually in pain. I accept what I have and just deal with. I always had jobs that required physical strength and stamina. I'm not angry but occasionally sad that I cant do the things that I enjoyed.
I recently divorced and relocated with my children. I'm under a lot of stress. I have not been feeling well. I have sudden flare ups, my skin, joints and muscles are exploding in pain, my vision is sometimes blurred, I have ringing in my ears, my hair is thinning a lot, my fingers on my right hand is tingling and I have an uncommon skin rash lately even for Lupus. I have a new symptom my head is shaking. So...I started with a new rhumatologist. A full Blood test (non fasting) was immediately taken and Hep C came up as positive but Lupus was gone. The doctor feels definitively that I have Hep C and nothing else!. He told me that depression and stress cause pain. I know they exasperate pain, but I'm not a hypochondriac nor am I hysterical woman. I am going for another blood test tomorrow to confirm the Hep C result. This doctor does not have the best personality but I will finish with the testing he requested.
Could it be possible that Hep C masked itself and gave false / positive reading? If so, why was I treated by the other rhumatologist with methotrexate for so many years? Can anyone shed some light on this situation? I'm only 51 and sometimes I just want to be gone from this world and the pain. But I have responsibilities, children and a very demanding parrot that needs my care, ill work this out.