UTI's, Ovarian Cysts and L.Q.Abdominal Swelling

[Juliet78]

I’ve got a difficult question, so let me explain. I found out a week ago from my doctor that sent me for Ultrasounds, that I have a large cyst in my right ovary and several smaller ones in my left ovary. Blood work also indicated a slightly high white blood cell count, whatever that means. However the earliest appointment I could get, due to being on government assistance, isn’t until the first week of August.
However I can’t help but feel there’s more going on and I’m not getting anywhere because I’m not asking the doctors the right questions or something. So on that note, is there somehow a connection between these strange symptoms I’ve been having these past three months?

My symptoms as of now that are the most noticeable are swelling in my left hip area (kind of around the area of my hip bone, making it hard to tell that I have a bone there… I’m also 5’2 and usually98lbs, but have dropped about ten of those), along with the area feeling slightly tender when I sit, or lay on that side. It also seems to get worse when I consume food or beverages, which also makes my stomach bloat or swell making me feel full quickly and resulting in a diminished appetite.
I’ve also been feeling very tired lately, even though I sleep relatively well, despite the random hot flashes I get when I’m sleeping (usually I stay fairly chilly, always blamed it on bad circulation, but now I sweat at night) as well as throughout the day and I’ve just got a general feeling of aches all over (kind of like you do when you have the flu or something). At least once a day I’ll get a stabbing pain in my lower pelvic area, but it doesn’t seem anyway associated with the swelling. I’ve also been urinating a lot more frequently, as well as being on the border of diarrhea (for a week now). I’ve also noticed these last few days that my bottom lip keeps splitting, and I’m wondering if that has something to do with everything else.

I had symptoms of a UTI back in April, but it didn’t end up getting treated until they returned the following month in May. In June a home screening test for UTI’s sent me searching for another doctor, which I finally found the first week of July after just having severe abdominal/ pelvic pains, bloating, nausea and diarrhea. Finally I managed to obtain an ultrasound that revealed the cysts, but they said everything else looked normal.

Has anyone else had anything like this happen to them?

[misti]

hey I have had some of your symtoms such as swelling in my left side friquint urinashion and bad pain in my abdomin first will start with the pain and urinating i had the same symtoms and i was diagnost with a condishion called interescystial cystitas about a year later i was told i have a inlarged cyst on my left overy and i resantly lost 5 lbs so if i was you i ask to be checked for the above condishion pardin my spelling but trust they will know what your talking about and as far as your night sweats and low whiteblood cell count i would ask for more blood work that could mean something is rong with your amuin system or mean your body is fighting some kind of infection sorry about my spelling

[jen_zx2]

I was also just diagnosed with an ovarian cyst and so I have been doing some research. When talking with other people who have had one they described a lot of the symptoms you have. I am experiencing them myself. It is true you can have an elevated white count, in fact it can mimic appendicitis. Everyone I have talked to said they experienced vomiting, fever, abdominal pain, bloating, painful intercourse, weird discharge and elevated white count. I have had lower back pain, cramping, 2 menses in 1 month, spotting on and off, the fullness you talked about, sharp pains that come and go, bloating, urinary frequency and nausea. It sucks. I kept blaming all these symptoms on stress until I was finally fed up with having 2 periods in 1 month the first one was 7 days and a week later I started again and bled for 11 days. Now everything kind of makes sense to me. I am a little concerned, but I am waiting for my appt. with the gyno doc. to see what he can do for me. I am hoping he will disolve it with birth control or drain it so hopefully I will go back to some normalcy. However, I think that if you are that concerned about it you should continue to bug them and demand further follow up. Don't take no for an answer and definatly express your concerns and fears! I hope everything turns out ok for you. GOOD LUCK

[love1199]

It certainly sounds as if your symptoms are related to your cysts. I had the same symptoms after a D&C for missed miscarriage. Within six weeks I'd grown a 7cm complex cystic mass inside my ovary, with a smaller cyst on the other. My symptoms were twice blamed on UTI, but test came back negative and horribly strong antibiotics didn't help, and I asked for a sono. That's when the source of my pain, bloating, fever and nausea became apparent. Cysts can also cause changes to bowel and urinary habits as well as menses, and they can cause incredible fatigue. Some women experience pelvic pain or pressure, some don't.

Will be having surgery within the week to remove mine (loosing the ovary as well), as they are not the kind that can shrink and in fact are only getting larger.

Even with good doctors, it really is important to educate yourself, as the better and more relevant questions you can ask, the more in-depth info you can get and the more peace of mind you have, because even worse than the pain is fear of the unknown.

Hopefully by now your situation was resolved to your satisfaction. Please let us know.

[designsdesire]

Oh , goodness I wish you felt better . Check out this website it will help answer alot of your questions , it helped me so much HYSTERSISTERS.COM I have problems with my Ovaries - but It was complicated by the fact that I had already had a Hysterectomy in which the Ovaries were removed - go figure the little critters came back- HYSTERSISTERS.COM helped me figure - out what was going on . Apparently there is something called Ovarian Remmnant Syndrome - it's where a piece of the Ovary breaks - off when during the Operation and then regenurates itself . If it was'nt for HYSTERSISTERS.COM I would have never known how it was that the Ovaries were surgically removed but in a later CT Scan there they were again . I was sent to an Oncologist he reasured me that the masses on my Ovaries were'nt Cancerous . But please take a look at the website it's very informative , and set - up like this site where you ask questions and peolpe respond back , but they have all been through it before . Please keep me informed , you can e- mail me at carlav867@aol.com

[kirstin]

Hey, it was very useful reading all the information that has been posted. I too have the same symotoms and have two cysts one seven cm and the other smaller. Both inside both ovaries. I am a little concerned as no-one really seems to be explaining what will be happening to me. I know i am being opperated on in the next few weeks but other than that dont really understand it. Kirstinruthjones@fastmail.fm

[Juliet78]

Hello everyone and thanks for all the posts. Still don’t know much, doctors are in no big hurry to do anything or tell me anything. The U/S I had done back in July said my uterus is retroverted; there are some follicular cysts in both ovaries and a larger “complex cystic area” in the right. Also, it was noted that the “complex cystic area” could be hemorrhagic cyst or endometrioma as possibilities.
I went for another U/S on Monday, but have not been able to get in touch with the doctor to find out anything. Spoke to my family doctor, who recently sent me for a Mammo & U/S of my right breast, but she only told me that there “appears to be a nodule near the lump” and referred me back to the Ob/Gyn.
So I unfortunately don’t know anything more now than I did six months ago. I understand there are a lot more women with the same symptoms, but I’m still worried there’s something else going on. The doctors did just as I expected and put me back on birth control, saying that would help. But I’ve been on it for years and it’s never stopped them before. My Ob/Gyn also put me on Encora, saying that could help with some of the mood issues I’ve been having, but she also put me on Yaz for B.C. and they don’t seem like they should be taken together. So it’s just more sit and wait until I can talk to her or see her. My next appointment isn’t until January, but thanks to good old answering systems, I can’t ever talk to a human. Does anyone take those two together (Encora & Yaz)?

Also, with the hip issues I mentioned. I know some of you said you have them as well and I wanted to know if they sounded similar to what I’m going through, because this is also something I went through when I was a child.
When I was a kid my legs would randomly hurt, making me cry and “squirm” non-stop. The only things at that time that would help get rid of some of the pain was to grind my hip bones, or have my mommy rub them until I feel asleep. Doctor after doctor said it was growing pains, but my mom wasn’t happy with that answer after years of this unexplained plain and no growth. Finally a doctor told her it was arthritis in my knees and hips. After dealing with it my entire life, I just kind of outgrew it I guess because I haven’t had any problems in years. But for months now it’s been going on again, mostly at night though. Within minutes of going to bed the aching and pain starts, which eventually I fall asleep, but I’m grinding my hips which is causing more pain and keeping me up, not to mention my poor husband. Is that the same thing that everyone else feels? As funny as I know it’s going to sound, the only thing that makes it feel any better is when my hubby rubs the center of my **** cheek really hard, and I’m off and sleeping like a baby… until he stops, and I’m up whining. LOL

As soon as I find out more from the U/S done on Monday I’ll post. Hopefully their going to be able to tell me more or do something, because I don’t know how much longer I can take all this. But thanks to everyone that’s posted, that’s made it a little easier. Thanks!!

Dee

[Unregistered]

I've also been experiences ovarian cysts lately and I have chronic joint/muscle pain. I've had horrible night sweats and the last few days I've had major cramping in my limbs and nothing seems to help. But I've read that extra sweating can cause muscle cramps so with your hotflashes it possible could be that. One other thing, Do you still get your bottom lip split? I've been having that too. I just thought that was a really weird. I'm going to gyno today and will find out.

[Juliet78]

Yep… sounds WAY too familiar. Those are the things that have been getting to me the most. Between the joints in my legs killing me, the hot flashes, cramping, nausea, back pain, muscle aches, swelling and OMG the mood swings… its enough to drive the crazy to sanity and back.
I called the Ob/Gyn office again… still haven’t returned my call, so I’m still unsure as to what the last U/S showed. It’s been almost two weeks and I’m REALLY getting flustered with their lack of concern. One would think the least they could do is call back with some simple results. Unfortunately I’m starting to get used to the fact that they just have way too many patience to care about anyone of them.
As far as the lump in my breast, I got the letter in the mail from the hospital today. It said that “imaging study showed an abnormality that requires further follow up by your physician. The only way that you can be sure that the abnormality is benign is to speak with your physician and have follow up tests.”. Don’t know what it is about those words, but I swear I feel like the floor just fell from under my feet. I’m sure I’m probably overreacting, hope I’m overreacting, but am scared on the other hand that I’m not. If that makes any sense. LOL
I’ll post again later if I get a call back from my Ob/Gyn with U/S results, if not I will as soon as I know something else. Thanks again to everyone. It’s horrible that we have to deal with this, but knowing I’m not the only one helps a little. Sometimes having someone understand how frustrating it can be makes me feel better than any medication ever could. Thanks again and everyone keep me posted as to how we’re all doing. Have a good one and I’ll write back soon. TY!!

Dee

[Unregistered]

Hi
My daughter is also suffering and has just been in hospital with the same sounding problems. Im now looking for answers. We was told that one of her ovaries is swollen and that she has polycystic ovaries. however when questioning the Gyno she stated that it should not be a problem and she should wait for a laposcopy. She is not getting anywhere on the NHS due to upto a 6 month waiting list before getting even an appoinment. She is doubling in agony, tired all the time and continual back pain. The pain killers barely take the pain away even though she has tried so many different ones prescribed by our GP. The gyno is now stabbing in the wind again stating she could have irratable bowel. She is 20 years old and her whole life has turned round and it has been ver disabling for her. She now has had letters from work about the time she has had off even though they seem to be very concerned. I have now decided to take her private due to not getting any answers. I have paid into the NHS for years. My daughter has for a few years my husband also works but we cannot get anywhere or get the treatment we are entitled too. In the meantime my daughter has to loose 11/2 stone in weight within two months and in terrible pain for 5-7 days a week. She looks like she is on drugs the way her eyes look so dark through lack of sleep. I have no option now to go private.

Has anyone else been told this?