Does THIS sound familiar??

[Unregistered]

As if endo isn't bad enough we get these cruel and/or ignorant people and doctors (mostly men) making things worse.

Do these quotes sound familiar? If they don't then lucky you.

"Just get pregnant"; "it's your fault";
"You just need to get laid real good"; "You should exercise more";
"You're depressed"; "It's in your head";
"It's because you waited to get pregnant";
"It's because of the way you live, the way you eat, etc.";
"You should pray or pray more"; "Just take some aspirin.";
"Are you feeling better these days?, What, you still don't feel better? I am surprised. (As if it is just going to go away for no reason, DUH)";
"You don't LOOK sick"; "You'll be okay"

And others who have known for awhile that you don't feel well they say some things like: "Let's go for a bike ride." or "Why don't you want to go do (whatever it is)?"; "What's wrong?"; "Why are you limping, hunching over, etc.?"; "You sleep too much."; "You're lazy."; "You are a *****."

Then they presume to know how you feel even better than you do saying stuff like:
"You pretend like it's way worse than it is"; "It's not that bad.";
"You're faking."; "You just want attention."

GOD!!! like the pain and no longer living a real life anymore isn't bad enough......but we have to live with this kind of **** as well, including opposition from doctors, insurance companies, and Social Security disability, whose purpose is to spend our money trying to keep it from us while we go through a very long, long waiting period and jumping through hoops because we KNOW how bad it is and that we DO deserve it because we cannot work and also therefore cannot afford insurance to get medical treatment that (longshot) may offer some relief. At the least we need pain management docs and meds. (Unfortunately that's the only thing that make any difference for me.) But without insurance (which I cannot afford. I already spent my life savings trying to get better.) it has been highly difficult to even try any other treatments. (The only thing left to try is trigger point therapy and more nerve block injections.)

For those who have this disease...
I understand and hope you will find something that works for you.

For those who know someone who has this...
PLEASE be understanding, she is doing ALL she can... and then some. She is NOT FAKING it. She feels terrible and is going through the worst thing in her life. She NEEDS your support. She is not lazy or trying to get a free ride. (She has worked hard through her life and has been self suficient. Someone doesn't leave a good career and go through surgeries just to get a hand out. IT IS REAL and real painful.
Men: Imagine being kicked in the nuts...now imagine feeling that same way every second of every day for years...that's as close a comparison I can imagine.)

PLEASE Don't abuse, second guess her or abandon her. She hates to have to ask for help so offer it to her and be kind. AND, be glad that you don't feel like she does.

God bless you.

[hogndog]

Wow! Can we say bitter?; I'm sorry , but then maybe that's not the right word. I've an idea there is a web site that may be able to assist you & it ti's http://www.4myheart.com Who knows, it may provide you with an answer. As Always, In His Service.

[nccarol28732]

Yes this sounds very familiar I lived with it since age 12 shortly after getting my period. All those quotes are exactly what i have heard. Do you have endometriosis? That is what I had took years to diagnose and also I finally was diagnosed with Interstitial cystitis often overlooked and told it wsa in my head. Spent a fortune on doctors and physciatrists. Have you heard of it? Sometimes found in conjunction with endo and without.

[hogndog]

Good Day; and a very good day it ti's. This is a day the Lord Has Made, Be Glad And Rejoice In It!. Look this up & may it help. http://www.endometriosis.org/ Have a great day; As Always, In His Service.

[Sherermom]

I was diagnosed at age 11 (youngest in history)after severe vomiting of bile and 104 fever. They ran test after test on me for days. The finally did exploritory surgery. They wanted to do a complete hysterectomy when they found what they did but my mother told them no. I underwent an 8 hour surgery. The endo was all over my bowels and inside the cavity. It was on my left lung. I underwent surgeries every year until my senior year. My Senior year I was also diagnosed with Polycistic ovaries as well. They did a laperotomy (hospitalized for 3 weeks) and took off 3/4 of both ovaries. They took off growths where there was not to be any again. See endo bleeds every month like your lining. It sluffs off and grows again where it attaches itself. How it entered the abdominal cavity was via the falopian tubes (open ended).

Life for me was horrible and all the time I spent in the hospital I never graduated high school. The school took my credits away and my mother was not a fighter. I was made fun of and it really hurt. People said I had a baby when I was gone. I was so very thin I do not know how they could have thought this. My friends came together and I was voted Princess of the Sweetheart Ball at my High School my Jr. year. That made me feel much better knowing there were only just a few jerks in the bunch. I ended up in the hospital soon after this was over again.

I have had three beautiful children. Remarried and was pregnant with twins. I almost bled to death with them. I had to have an emergency histerectomy(?spelling).

I have come to deal with it and accept.

Try to learn all that you can about it and you can fight it. If you do not believe in your doctor and most don't then find another. Unfortunatly that road has to be traveled so often! I wish you well.

I now have MS so if I did not spell correctly I am so very sorry.

[hogndog]

Pardon Me If It Seems That i'm not awake yet, because i'm not. So then, lets try something different. http://www.whfoods.org/genpage.php?t...dspice&dbid=78 Just something i have tried & it really works. Thank You, As Always, In His Service.

[tiny_rooster_girl]

fo real!,
AMEN! i feel and been through all of that . And yeah you cant help but feel biter and have days where you feel like no one can give ashit . BUT rember its a bad day and call i t that .I have days i just want to be alone and hide . But if i dont tell my self its just one of those days , week or months . I would not have a life even tho I dont but the good days are worth takeing advantage of . I suck at spelling ! and Im on pain meds . They got me on morphone at the moment because haveing couple beers and motrin was'nt cuting it And even then i cant take the dam pain pill because gives me headake LOL. LIFE it can be like a cat with a bag on its head runing round crazzy ! I feel your dispointment and when i read your post i could'nt help but laugh alittle . Bcause its so true! how docters treat you , abuse you , make you feel like a tard .The kicker of them all is the , treating you like your drug seeking . I once looked at doc slaped my arm and said Do you see a thousand holes in my arm?? NO ! and did my yurn come back clean? yeah SO wy dont you just get on with your treatment . I feel yea ...hope you have a good day soon .Rooster_girl

[hogndog]

My My Rooster Girl, sounds to me like you need a good nights sleep & then post me in the morning. Talk to you then. Ta Ta!

[Unregistered]

LOl,
Its day time for me , not one to take naps even with no sleep . And is ther any reason i should get back to you ? you found a cure ?? just j/k:P Im a big jokesta

[hogndog]

That was fast! Let me ask, just what is it that you have done to this point? Have you investegated anything tha't already been suggested? Just what sort of an answer are you looking for & what exactly is your complaint, in other words what are you suffering from? I'll wait for a reply. Thank's.