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  1. #1
    Join Date
    Sep 2009
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    Default Many problems: Digestion, Fatigue, Sleep, Joints, Muscles...help! At wits end! :-(

    As soon as I turned 20 (3 years ago), seemed that all sorts of problems started to happen. Help! I'm uninsured but have seen a doctor who didn't seem to have any idea, his best guesses were Lyme disease and Rheumatoid arthritis, which I think are way off base. Everyone I've asked has told me something different: CFS, Ciliac, Fibromialgia...list goes on. I'm at my wits end and don't know what else to do here . It seems that malnutrition/malabsorption could be a likely culprit to affect such a wide range of symptoms and I was recently trying a gluten-free diet because I thought it may be celiac disease, but I've been on the diet for over 2 weeks and notice very little, if any difference. My diet isn't a the best diet ever, but I wouldn't call it a bad diet by any means.

    -Chronic Fatigue: Always feel like I'm dragging myself around. Very tired all the time, physically and emotionally.

    -Sleep Problems: Unrefreshing sleep: weather I sleep 2 hours or 12, I never feel refreshed. I have to force myself out of bed or I will just keep sleeping all day. I've also started to snore and sleep with my mouth open which I don't believe I did before.

    -Joint and Muscle Problems: Muscles feel weak, fatigued, tender and achy, especially in knees, but not painful. Applying pressure at joints causes burning sensation as if many reps on a weight machine were just done. Knees feel and appear swollen when on feet for extended amount of time, even once culminating with liquid in my knees.

    -Digestion Problems: Constant feeling of fullness and bloating. Mixed up sense of hunger, such as being hungry when I'm full and full when I should be hungry. Very gassy; I feel like a muffler at times! Infrequent movements (2-3 times a week!) Distended stomach, which is very unusual for me, I've never been even slightly overweight. Floating stoole. Spicy food causes very intense heartburn, constant feeling of fullness. I believe I had food poisoning about a year ago and threw up black coffee-ground like blood.

    Mental: Very bad memory and drastically increased ADD, it's really affecting my work! Lacking motivation or interest to do normal everyday activities that I used to do or enjoy to do.

    -Other: All lymph nodes swollen. Lots of phlegh in throat, especially in the morning or after having dairy.

    -Skin: Although starting about 6 years ago (much earlier than other symptoms) I seem to have developed an allergy to some soaps, shampoos, oxyclean, etc...they cause small pimple like blisters on my body, between fingers and toes and scalp especially. Body breakouts have been avoided for a long time due to avoiding known triggering brands, but I still always have a few blisters on my scalp. They are very itchy and painful. May not have a relation to other symptoms, but figured I should share just in case. More recently however (past year), I've started getting what appears to be cystic acne on my face, very deep, large, long-lasting pimples.
    Last edited by kiwisoup; September 18th, 2009 at 04:55 AM.

  2. #2
    Unregistered Guest

    Default Re: Many problems: Digestion, Fatigue, Sleep, Joints, Muscles...help! At wits end! :-

    Hi,

    it could be cfids or fms but it might have a simpler explanation of adrenal insufficiency. You can get this checked with a cortisol blood test although the gold standard is an acth stimulation test which measures your cortisol reserves. If these are low you can get all sorts of problems like food sensitivities, joint problems, fatigue etc. Might be worth checking. Good luck, Tim.

  3. #3
    Unregistered Guest

    Default Re: Many problems: Digestion, Fatigue, Sleep, Joints, Muscles...help! At wits end! :-

    Quote Originally Posted by kiwisoup View Post
    As soon as I turned 20 (3 years ago), seemed that all sorts of problems started to happen. Help! I'm uninsured but have seen a doctor who didn't seem to have any idea, his best guesses were Lyme disease and Rheumatoid arthritis, which I think are way off base. Everyone I've asked has told me something different: CFS, Ciliac, Fibromialgia...list goes on. I'm at my wits end and don't know what else to do here . It seems that malnutrition/malabsorption could be a likely culprit to affect such a wide range of symptoms and I was recently trying a gluten-free diet because I thought it may be celiac disease, but I've been on the diet for over 2 weeks and notice very little, if any difference. My diet isn't a the best diet ever, but I wouldn't call it a bad diet by any means.

    -Chronic Fatigue: Always feel like I'm dragging myself around. Very tired all the time, physically and emotionally.

    -Sleep Problems: Unrefreshing sleep: weather I sleep 2 hours or 12, I never feel refreshed. I have to force myself out of bed or I will just keep sleeping all day. I've also started to snore and sleep with my mouth open which I don't believe I did before.

    -Joint and Muscle Problems: Muscles feel weak, fatigued, tender and achy, especially in knees, but not painful. Applying pressure at joints causes burning sensation as if many reps on a weight machine were just done. Knees feel and appear swollen when on feet for extended amount of time, even once culminating with liquid in my knees.

    -Digestion Problems: Constant feeling of fullness and bloating. Mixed up sense of hunger, such as being hungry when I'm full and full when I should be hungry. Very gassy; I feel like a muffler at times! Infrequent movements (2-3 times a week!) Distended stomach, which is very unusual for me, I've never been even slightly overweight. Floating stoole. Spicy food causes very intense heartburn, constant feeling of fullness. I believe I had food poisoning about a year ago and threw up black coffee-ground like blood.

    Mental: Very bad memory and drastically increased ADD, it's really affecting my work! Lacking motivation or interest to do normal everyday activities that I used to do or enjoy to do.

    -Other: All lymph nodes swollen. Lots of phlegh in throat, especially in the morning or after having dairy.

    -Skin: Although starting about 6 years ago (much earlier than other symptoms) I seem to have developed an allergy to some soaps, shampoos, oxyclean, etc...they cause small pimple like blisters on my body, between fingers and toes and scalp especially. Body breakouts have been avoided for a long time due to avoiding known triggering brands, but I still always have a few blisters on my scalp. They are very itchy and painful. May not have a relation to other symptoms, but figured I should share just in case. More recently however (past year), I've started getting what appears to be cystic acne on my face, very deep, large, long-lasting pimples.
    have you checked into mold allergies ?? That's what it sounds like to me.

  4. #4
    Unregistered Guest

    Default Re: Many problems: Digestion, Fatigue, Sleep, Joints, Muscles...help! At wits end! :-

    It sounds very much like Morgellons Disease to me.
    Not everyone gets the fibers.

    http://www.morgellons-disease-resear...Message-Board/

  5. #5
    Join Date
    Sep 2009
    Posts
    12

    Default Re: Many problems: Digestion, Fatigue, Sleep, Joints, Muscles...help! At wits end! :-

    Please read: http://www.mold-survivor.com/symptoms.html


    Quote Originally Posted by kiwisoup View Post
    As soon as I turned 20 (3 years ago), seemed that all sorts of problems started to happen. Help! I'm uninsured but have seen a doctor who didn't seem to have any idea, his best guesses were Lyme disease and Rheumatoid arthritis, which I think are way off base. Everyone I've asked has told me something different: CFS, Ciliac, Fibromialgia...list goes on. I'm at my wits end and don't know what else to do here . It seems that malnutrition/malabsorption could be a likely culprit to affect such a wide range of symptoms and I was recently trying a gluten-free diet because I thought it may be celiac disease, but I've been on the diet for over 2 weeks and notice very little, if any difference. My diet isn't a the best diet ever, but I wouldn't call it a bad diet by any means.

    -Chronic Fatigue: Always feel like I'm dragging myself around. Very tired all the time, physically and emotionally.

    -Sleep Problems: Unrefreshing sleep: weather I sleep 2 hours or 12, I never feel refreshed. I have to force myself out of bed or I will just keep sleeping all day. I've also started to snore and sleep with my mouth open which I don't believe I did before.

    -Joint and Muscle Problems: Muscles feel weak, fatigued, tender and achy, especially in knees, but not painful. Applying pressure at joints causes burning sensation as if many reps on a weight machine were just done. Knees feel and appear swollen when on feet for extended amount of time, even once culminating with liquid in my knees.

    -Digestion Problems: Constant feeling of fullness and bloating. Mixed up sense of hunger, such as being hungry when I'm full and full when I should be hungry. Very gassy; I feel like a muffler at times! Infrequent movements (2-3 times a week!) Distended stomach, which is very unusual for me, I've never been even slightly overweight. Floating stoole. Spicy food causes very intense heartburn, constant feeling of fullness. I believe I had food poisoning about a year ago and threw up black coffee-ground like blood.

    Mental: Very bad memory and drastically increased ADD, it's really affecting my work! Lacking motivation or interest to do normal everyday activities that I used to do or enjoy to do.

    -Other: All lymph nodes swollen. Lots of phlegh in throat, especially in the morning or after having dairy.

    -Skin: Although starting about 6 years ago (much earlier than other symptoms) I seem to have developed an allergy to some soaps, shampoos, oxyclean, etc...they cause small pimple like blisters on my body, between fingers and toes and scalp especially. Body breakouts have been avoided for a long time due to avoiding known triggering brands, but I still always have a few blisters on my scalp. They are very itchy and painful. May not have a relation to other symptoms, but figured I should share just in case. More recently however (past year), I've started getting what appears to be cystic acne on my face, very deep, large, long-lasting pimples.

  6. #6
    Join Date
    Sep 2009
    Posts
    12

    Default Re: Many problems: Digestion, Fatigue, Sleep, Joints, Muscles...help! At wits end! :-

    http://www.mold-survivor.com/symptoms.html

    Quote Originally Posted by kiwisoup View Post
    As soon as I turned 20 (3 years ago), seemed that all sorts of problems started to happen. Help! I'm uninsured but have seen a doctor who didn't seem to have any idea, his best guesses were Lyme disease and Rheumatoid arthritis, which I think are way off base. Everyone I've asked has told me something different: CFS, Ciliac, Fibromialgia...list goes on. I'm at my wits end and don't know what else to do here . It seems that malnutrition/malabsorption could be a likely culprit to affect such a wide range of symptoms and I was recently trying a gluten-free diet because I thought it may be celiac disease, but I've been on the diet for over 2 weeks and notice very little, if any difference. My diet isn't a the best diet ever, but I wouldn't call it a bad diet by any means.

    -Chronic Fatigue: Always feel like I'm dragging myself around. Very tired all the time, physically and emotionally.

    -Sleep Problems: Unrefreshing sleep: weather I sleep 2 hours or 12, I never feel refreshed. I have to force myself out of bed or I will just keep sleeping all day. I've also started to snore and sleep with my mouth open which I don't believe I did before.

    -Joint and Muscle Problems: Muscles feel weak, fatigued, tender and achy, especially in knees, but not painful. Applying pressure at joints causes burning sensation as if many reps on a weight machine were just done. Knees feel and appear swollen when on feet for extended amount of time, even once culminating with liquid in my knees.

    -Digestion Problems: Constant feeling of fullness and bloating. Mixed up sense of hunger, such as being hungry when I'm full and full when I should be hungry. Very gassy; I feel like a muffler at times! Infrequent movements (2-3 times a week!) Distended stomach, which is very unusual for me, I've never been even slightly overweight. Floating stoole. Spicy food causes very intense heartburn, constant feeling of fullness. I believe I had food poisoning about a year ago and threw up black coffee-ground like blood.

    Mental: Very bad memory and drastically increased ADD, it's really affecting my work! Lacking motivation or interest to do normal everyday activities that I used to do or enjoy to do.

    -Other: All lymph nodes swollen. Lots of phlegh in throat, especially in the morning or after having dairy.

    -Skin: Although starting about 6 years ago (much earlier than other symptoms) I seem to have developed an allergy to some soaps, shampoos, oxyclean, etc...they cause small pimple like blisters on my body, between fingers and toes and scalp especially. Body breakouts have been avoided for a long time due to avoiding known triggering brands, but I still always have a few blisters on my scalp. They are very itchy and painful. May not have a relation to other symptoms, but figured I should share just in case. More recently however (past year), I've started getting what appears to be cystic acne on my face, very deep, large, long-lasting pimples.

  7. #7
    dips Guest

    Smile Re: Many problems: Digestion, Fatigue, Sleep, Joints, Muscles...help! At wits end! :-

    Please try following :

    1. Borage or Evening primrose oil after food with a glass of water

    2. Eat 1-2 tspoons of ghee (available in indian stores)

    3. Have early dinner.

    4. Check with Ayurvedic consultant for your symptoms. Take some digestive formula (like Avi Pattikar choorna) with his consultation.

    All the best !

    Dips

  8. #8

    Default Re: Many problems: Digestion, Fatigue, Sleep, Joints, Muscles...help! At wits end! :-

    i've had the same problem, according to my doctor enzyme nutrition has something to do with my digestion problems [/URL]and overall health, was lacking digestive enzyme specifically.. he prescribed a source of digestive enzyme called digestazyme and also was advised to undergo detox diet. It did work for me.


    Quote Originally Posted by kiwisoup View Post
    As soon as I turned 20 (3 years ago), seemed that all sorts of problems started to happen. Help! I'm uninsured but have seen a doctor who didn't seem to have any idea, his best guesses were Lyme disease and Rheumatoid arthritis, which I think are way off base. Everyone I've asked has told me something different: CFS, Ciliac, Fibromialgia...list goes on. I'm at my wits end and don't know what else to do here . It seems that malnutrition/malabsorption could be a likely culprit to affect such a wide range of symptoms and I was recently trying a gluten-free diet because I thought it may be celiac disease, but I've been on the diet for over 2 weeks and notice very little, if any difference. My diet isn't a the best diet ever, but I wouldn't call it a bad diet by any means.

    -Chronic Fatigue: Always feel like I'm dragging myself around. Very tired all the time, physically and emotionally.

    -Sleep Problems: Unrefreshing sleep: weather I sleep 2 hours or 12, I never feel refreshed. I have to force myself out of bed or I will just keep sleeping all day. I've also started to snore and sleep with my mouth open which I don't believe I did before.

    -Joint and Muscle Problems: Muscles feel weak, fatigued, tender and achy, especially in knees, but not painful. Applying pressure at joints causes burning sensation as if many reps on a weight machine were just done. Knees feel and appear swollen when on feet for extended amount of time, even once culminating with liquid in my knees.

    -Digestion Problems: Constant feeling of fullness and bloating. Mixed up sense of hunger, such as being hungry when I'm full and full when I should be hungry. Very gassy; I feel like a muffler at times! Infrequent movements (2-3 times a week!) Distended stomach, which is very unusual for me, I've never been even slightly overweight. Floating stoole. Spicy food causes very intense heartburn, constant feeling of fullness. I believe I had food poisoning about a year ago and threw up black coffee-ground like blood.

    Mental: Very bad memory and drastically increased ADD, it's really affecting my work! Lacking motivation or interest to do normal everyday activities that I used to do or enjoy to do.

    -Other: All lymph nodes swollen. Lots of phlegh in throat, especially in the morning or after having dairy.

    -Skin: Although starting about 6 years ago (much earlier than other symptoms) I seem to have developed an allergy to some soaps, shampoos, oxyclean, etc...they cause small pimple like blisters on my body, between fingers and toes and scalp especially. Body breakouts have been avoided for a long time due to avoiding known triggering brands, but I still always have a few blisters on my scalp. They are very itchy and painful. May not have a relation to other symptoms, but figured I should share just in case. More recently however (past year), I've started getting what appears to be cystic acne on my face, very deep, large, long-lasting pimples.
    Last edited by moderator; February 19th, 2010 at 12:44 AM. Reason: link to site removed - moderator

  9. #9
    Join Date
    Aug 2009
    Posts
    15

    Default Re: Many problems: Digestion, Fatigue, Sleep, Joints, Muscles...help! At wits end! :-

    Quote Originally Posted by kiwisoup View Post
    As soon as I turned 20 (3 years ago), seemed that all sorts of problems started to happen. Help! I'm uninsured but have seen a doctor who didn't seem to have any idea, his best guesses were Lyme disease and Rheumatoid arthritis, which I think are way off base. Everyone I've asked has told me something different: CFS, Ciliac, Fibromialgia...list goes on. I'm at my wits end and don't know what else to do here . It seems that malnutrition/malabsorption could be a likely culprit to affect such a wide range of symptoms and I was recently trying a gluten-free diet because I thought it may be celiac disease, but I've been on the diet for over 2 weeks and notice very little, if any difference. My diet isn't a the best diet ever, but I wouldn't call it a bad diet by any means.

    -Chronic Fatigue: Always feel like I'm dragging myself around. Very tired all the time, physically and emotionally.

    -Sleep Problems: Unrefreshing sleep: weather I sleep 2 hours or 12, I never feel refreshed. I have to force myself out of bed or I will just keep sleeping all day. I've also started to snore and sleep with my mouth open which I don't believe I did before.

    -Joint and Muscle Problems: Muscles feel weak, fatigued, tender and achy, especially in knees, but not painful. Applying pressure at joints causes burning sensation as if many reps on a weight machine were just done. Knees feel and appear swollen when on feet for extended amount of time, even once culminating with liquid in my knees.

    -Digestion Problems: Constant feeling of fullness and bloating. Mixed up sense of hunger, such as being hungry when I'm full and full when I should be hungry. Very gassy; I feel like a muffler at times! Infrequent movements (2-3 times a week!) Distended stomach, which is very unusual for me, I've never been even slightly overweight. Floating stoole. Spicy food causes very intense heartburn, constant feeling of fullness. I believe I had food poisoning about a year ago and threw up black coffee-ground like blood.

    Mental: Very bad memory and drastically increased ADD, it's really affecting my work! Lacking motivation or interest to do normal everyday activities that I used to do or enjoy to do.

    -Other: All lymph nodes swollen. Lots of phlegh in throat, especially in the morning or after having dairy.

    -Skin: Although starting about 6 years ago (much earlier than other symptoms) I seem to have developed an allergy to some soaps, shampoos, oxyclean, etc...they cause small pimple like blisters on my body, between fingers and toes and scalp especially. Body breakouts have been avoided for a long time due to avoiding known triggering brands, but I still always have a few blisters on my scalp. They are very itchy and painful. May not have a relation to other symptoms, but figured I should share just in case. More recently however (past year), I've started getting what appears to be cystic acne on my face, very deep, large, long-lasting pimples.
    Hi, I am a kiwi too and am going through EXACTLY the same thing as you are. I hope we can work together on this and help each other out on a solution. My email is vynil_junkey@hotmail.com, if you contact me I can help you out as I have been through various doctors and done tons of research. My symptoms are; intense fatigue and weakness, anxiety, nausea, sleep disturbances, loose stools, mood swings, irritable, brain fog and general loss of motivation and interest.

    Your case to me sounds like a classic thyroid condition (hypothyroid). you must get this checked out. When you go your GP request a FULL thyroid panel (TSH, T3, T4 and thyroid antibodies). My tests all check out fine, to my dismay.

    other things I would look into are:
    -heavy metal poisoning (ie: mercury, could be from mercury fillings.)
    -candida overload
    -b12 deficiency
    -hypoglycemia (ie: diabetes)
    -addisons/adrenal/hormonal imbalace

    Blood tests revealed I have low DHEA, to that similar of a 50 year old male (I am 24!). The blood test also revealed possible adrenal hypofunction. A saliva test showed low testosterone. My GP has refered me to an endocronologist through which I can hopefully find some answers, but I think supplementing with DHEA will do me a world of good.

    there are other possibilities also, but email me if you want to discuss further.

  10. #10
    joss Guest

    Default Re: Many problems: Digestion, Fatigue, Sleep, Joints, Muscles...help! At wits end! :-

    Quote Originally Posted by DigestionProblems View Post
    i've had the same problem, according to my doctor enzyme nutrition has something to do with my digestion problems [/URL]and overall health, was lacking digestive enzyme specifically.. he prescribed a source of digestive enzyme called digestazyme and also was advised to undergo detox diet. It did work for me.
    Hi Kiwi22, Boy its so nice to see someone with very similar complaints the muscel aches, fatique, digestive problems,Servealy drepressed lack of movement on one side of my body, neck shoulders left arm and hand and left leg which wont work properly this all just happened overnight several years ago and still trying to get digonised properly.

    I ve done alot of research on my conditions and finally perswayed my Dr to give me some Dopmine which is used for Parkinsons, she was reluctaint but did ive been on the plus other pain medis for awhile and noticed a hugh change.

    But a few weeks ago i took myself of them because i didnt want to get her into trouble,well didnt i fall back in a heap bad,bad move started them again yesterday starting to fel a little better heres hoping but dont give up.

    Ask them to look into Dystoina alot of illness comes in different forms of Dystonia.