Exhausted and need answers - Lesions - Fatigue - Confusion - Swelling - Spreading

[MSulli33]

Have been to 4 dermatologist, 2 General Practitioners, 1 ER visit, dentist and infectious disease doctor.
Diagnose fungal infection dermotitis, lesions visible Dr. stumped?
Symptoms
Lesions Face feels like biting or stinging (2nd or 3rd area infected)
Large lump on back of head/neck – has been biopsied – no cancer and came back with a vengeance and increased all symptoms after they biopsied.
Lesions Arm (4th place infected) Left arm has a large lump kind of like back of my neck now.
Lesions Chest (1st area infected I think)
Lesions Buttocks (1st or 2nd area infected)
Lesions foot (hands and feet have been the last places infected)
Lesions Hand (hands and feet have been the last places infected)
Veins in arm larger and more pronounced
Thin hard translucent red rod like streak on face moves from nose to cheek to lip
Black sand like specs on skin (thought was dirt at first but now it just appears no matter where I am or what I am doing)
Confusion and hard to concentrate – difficulty organizing my thoughts (something I was very good at prior to this)
Pressure in my jaw in the morning feels like if I move my mouth I might break the right side of my jaw.
Agitated /no libido.
Extreme fatigue (last 2 months May and June ‘09) last 2 weeks has been most sever normally up by 6am and having hard time moving by 9:30am.
Extremely Sensitive to bright lights (was driving and could not keep one of my eyes open it kept closing and oozing)
Blurry vision at times never in both eyes at the same time but have experienced in each eye.
Eyes become bloodshot for no reason (indoors at work with no irritant) I look like I’m on drugs this is getting increasingly worse.
Something floated across my eye looked like very small worm (only happened once)
Skin color fluctuates from very dark to very red to normal or blotch normal sometimes pasty feel to skin (primarily upper extremities and face)
Hairs on my arms seem to have increased and stand-up (like if you created static electricity and ran it across your arm)
Feet, from toes to about halfway up my foot turning black – when this happens it is typically accompanied by a bad cramp and then numbness
Sensation of something in my mouth/bad taste is better with gargling hydrogen peroxide and oral nastin
Fungus coating tongue still there with V-fend, and oral nastin
Healthy Teeth breaking when not eating just speaking (was at a meeting and my tooth just broke in half) have had serious oral problems since beginning. Feels like something is moving under my right back tooth.
Deep lines in my tongue that won’t heal? Update 7/17/09 some days little lines but today 2 deep gouges tounge really hurts and swollen.
Lips crack and very dry some days then other days are fine can see something moving in and out of the corner right side of mouth and lips
Swollen hands and feet every morning my face is swollen much of the time also. The days where facial swelling resides I have had people tell me I look like I have lost 15lbs and I have not lost any weight.
Some type of film over my toe nails very hard substance and underneath toenails – very very difficult to cut toe nails
May have started in 2006 when I had major pain in my tooth went to dentist on a Thursday and he took xray said there was no infection but went ahead and gave me a antibiotic and pain pill. On Friday called the dentist back because my face on the right side was swelling pain was increasing where pain meds were not alleviating the pain at all. He advised to stay the course so I did. By Sunday my entire right side of my face had swollen so much that I could not see out of my right eye and was in excruciating pain. He advised I go to the ER which I did they saw an abscess in my gum at the rear of my mouth right side (which was not there on Thursday) They gave me IV drip of pain med and antibiotics and drained the abscess. This worked and no other dental work was performed. After this event I began getting what I thought was deep acne but presented more like, what I know now, is a lesion.
Migraine type headaches at times. Massive
Ear pain until something broke through the skin then immediately went away.
Cravings for sweets Seriouse craving for Mocha
Muscle cramps in feet and legs sometimes for hours where hot water, walking etc.. does not release the cramp (does not feel like traditional Charlie horse) The pain is much stronger and typically happens right after I lay down to go to bed.
Joint pain right knee
Blood pressure continued to increase with a normal range for me now being around 137/93 was just a couple of months ago 120/80 consistentl/ blood pressure has not been normal in over 2 months
Normal blood work showing consistent reduction in protein levels and elevated glucose levels.
7/7/09 – symptoms getting worse – feel heavy pressure and movement in abdomen(from above pelvis upward) (doubled over) Vomiting past 3 days (stringy things worm-looking with white thick mucus or bile coating) – lesions increasing all over body – feels like I am dying – hard to hear out of my left ear and my voice keeps coming and going over last 4 days. My heart has suddenly begun racing and will stop as quickly as it started.
7/10/09 – My voice will come and go mid-sentence – very nerve racking – have to strain to speak. Seems to be some lump in the roof of mouth and still on right check. Good news is right cheek lesion is getting better with the DSP jeff gave me. Guess I should get some of my own – reminder to ask where to get…
7/14/09 – Tongue has the white coating again (fungus I’m sure) but it is very swollen and painful. Can’t eat when I chew the fungus is attaching to the food and coming off in tear shape white *****.
7/16/09 – can’t fit into any of my pants my stomach looks like I am pregnant (just menstruated can’t be – much less no sex so…) –
7/17/09 – Thank god the stomach has gone down quite a bit but have awful burps. Husband made comment that he has noticed how seldom I urinate and was wondering what I was doing different. I use to urinate very frequently and multiple times a night, now I go only a couple of times a day. Maybe due to mouth hurting - There is a new nickel size lump on the left side of my belly button – does not hurt.
Prescription Medications Tried:
· V-Fend
· Fluconazole
· PICC Line Antibiotic
· Nastin Oral
· Clindamycin
· Antifungal topical (prescription and over the counter)
· Doxycycline HYC
Supplements Using :
· Calcium w/ vit D
· Omega 3
· Vitamin C
· B-6 & B-12
· Magnesium
· Chromium
· Green Tea
· Garlic
· DHEA
· Nasin
· DHEA
· Vitamin A

Any suggestions?

[m3dh31p]

Do you currently live in Africa or have visited Africa in the past?

"Something floated across my eye looked like very small worm (only happened once)"

Could you please explain this statement further. Did you actually see a worm cross your eye (for example, in the mirror or seen by someone else) or was it a "floater" that looked like a worm?

[MSulli33]

No I live in US, Texas. It looks like a worm when it goes across my line of sight (hard to explain) it has only happened twice and neither time was I near or able to get to a mirror to look. But both times this happened I had twitching in that eye prior to see it. It does not hurt but was just a little weird. Not sure if it correlates with the other symptoms?

[m3dh31p]

"Normal blood work showing consistent reduction in protein levels and elevated glucose levels."

The symptoms are numerous and need to be considered thoughtfully. It may help if you provide more specific labs. Is total protein low or is there a particular fraction low, for example globulins? Also, regarding the elevated glucose, is it in the diabetic range? What other studies have been done?

[MSulli33]

I will have to get a copy of my lab results from my doctor on Monday, I was having blood work done every week while on the PICC so I have quite a few I can provide. The glucose was not in the diabetic range she just said it was consistently showing to be elevated but I was not fasting and the for the protein I honestly am not sure if she was speaking about overall levels or a specific one? Other tests we did a fungus panel which did not show anything, but skin scrapings revealed what she said a "broken down fungus" she could not identify but I had not used any antifungals so not sure why that was...Chest X-Ray did not show anything, nasal swab for staph came back negative. We could watch the progression but which she said looked bacterial but she was ceryain there was a fungus and yeast issue but not sure what the underlying cause agent is and why it seemed to progressing and did not get better with v-fen or any other antifungals.

[Skyhighnemo]

Hi,
I will look for Monday's blood work and give some suggestions.

Regards,
Skyhighnemo

[m3dh31p]

After a careful reading of your history and deliberation, my primary consideration would be some form of chronic mucocutaneous candidiasis. This is actually a group of disorders, some arising in childhood, others in adults, and associated with immunodeficiency or endocrine disorders. Further distinction would be based on the results of the tests and studies that you have undergone.

Of course, based on history alone, other conditions have to be included in the differential, but I have only mentioned what, in my opinion, may be the primary consideration. (This may also be subject to modification based on further information).

While I recommend discussing this with your physician, if you have any further questions after obtaining your lab results, please feel free to ask.

[Freddd]

[quote=MSulli33;189893]Have been to 4 dermatologist, 2 General Practitioners, 1 ER visit, dentist and infectious disease doctor.
Diagnose fungal infection dermotitis, lesions visible Dr. stumped?
Symptoms
Lesions Face feels like biting or stinging (2nd or 3rd area infected)
Large lump on back of head/neck – has been biopsied – no cancer and came back with a vengeance and increased all symptoms after they biopsied.
Lesions Arm (4th place infected) Left arm has a large lump kind of like back of my neck now.
Lesions Chest (1st area infected I think)
Lesions Buttocks (1st or 2nd area infected)
Lesions foot (hands and feet have been the last places infected)
Lesions Hand (hands and feet have been the last places infected)
Veins in arm larger and more pronounced
Thin hard translucent red rod like streak on face moves from nose to cheek to lip
Black sand like specs on skin (thought was dirt at first but now it just appears no matter where I am or what I am doing)
Confusion and hard to concentrate – difficulty organizing my thoughts (something I was very good at prior to this)
Pressure in my jaw in the morning feels like if I move my mouth I might break the right side of my jaw.
Agitated /no libido.
Extreme fatigue (last 2 months May and June ‘09) last 2 weeks has been most sever normally up by 6am and having hard time moving by 9:30am.
Extremely Sensitive to bright lights (was driving and could not keep one of my eyes open it kept closing and oozing)
Blurry vision at times never in both eyes at the same time but have experienced in each eye.
Eyes become bloodshot for no reason (indoors at work with no irritant) I look like I’m on drugs this is getting increasingly worse.
Something floated across my eye looked like very small worm (only happened once)
Skin color fluctuates from very dark to very red to normal or blotch normal sometimes pasty feel to skin (primarily upper extremities and face)
Hairs on my arms seem to have increased and stand-up (like if you created static electricity and ran it across your arm)
Feet, from toes to about halfway up my foot turning black – when this happens it is typically accompanied by a bad cramp and then numbness
Sensation of something in my mouth/bad taste is better with gargling hydrogen peroxide and oral nastin
Fungus coating tongue still there with V-fend, and oral nastin
Healthy Teeth breaking when not eating just speaking (was at a meeting and my tooth just broke in half) have had serious oral problems since beginning. Feels like something is moving under my right back tooth.
Deep lines in my tongue that won’t heal? Update 7/17/09 some days little lines but today 2 deep gouges tounge really hurts and swollen.
Lips crack and very dry some days then other days are fine can see something moving in and out of the corner right side of mouth and lips
Swollen hands and feet every morning my face is swollen much of the time also. The days where facial swelling resides I have had people tell me I look like I have lost 15lbs and I have not lost any weight.
Some type of film over my toe nails very hard substance and underneath toenails – very very difficult to cut toe nails
May have started in 2006 when I had major pain in my tooth went to dentist on a Thursday and he took xray said there was no infection but went ahead and gave me a antibiotic and pain pill. On Friday called the dentist back because my face on the right side was swelling pain was increasing where pain meds were not alleviating the pain at all. He advised to stay the course so I did. By Sunday my entire right side of my face had swollen so much that I could not see out of my right eye and was in excruciating pain. He advised I go to the ER which I did they saw an abscess in my gum at the rear of my mouth right side (which was not there on Thursday) They gave me IV drip of pain med and antibiotics and drained the abscess. This worked and no other dental work was performed. After this event I began getting what I thought was deep acne but presented more like, what I know now, is a lesion.
Migraine type headaches at times. Massive
Ear pain until something broke through the skin then immediately went away.
Cravings for sweets Seriouse craving for Mocha
Muscle cramps in feet and legs sometimes for hours where hot water, walking etc.. does not release the cramp (does not feel like traditional Charlie horse) The pain is much stronger and typically happens right after I lay down to go to bed.
Joint pain right knee
Blood pressure continued to increase with a normal range for me now being around 137/93 was just a couple of months ago 120/80 consistentl/ blood pressure has not been normal in over 2 months
Normal blood work showing consistent reduction in protein levels and elevated glucose levels.
7/7/09 – symptoms getting worse – feel heavy pressure and movement in abdomen(from above pelvis upward) (doubled over) Vomiting past 3 days (stringy things worm-looking with white thick mucus or bile coating) – lesions increasing all over body – feels like I am dying – hard to hear out of my left ear and my voice keeps coming and going over last 4 days. My heart has suddenly begun racing and will stop as quickly as it started.
7/10/09 – My voice will come and go mid-sentence – very nerve racking – have to strain to speak. Seems to be some lump in the roof of mouth and still on right check. Good news is right cheek lesion is getting better with the DSP jeff gave me. Guess I should get some of my own – reminder to ask where to get…
7/14/09 – Tongue has the white coating again (fungus I’m sure) but it is very swollen and painful. Can’t eat when I chew the fungus is attaching to the food and coming off in tear shape white *****.
7/16/09 – can’t fit into any of my pants my stomach looks like I am pregnant (just menstruated can’t be – much less no sex so…) –
7/17/09 – Thank god the stomach has gone down quite a bit but have awful burps. Husband made comment that he has noticed how seldom I urinate and was wondering what I was doing different. I use to urinate very frequently and multiple times a night, now I go only a couple of times a day. Maybe due to mouth hurting - There is a new nickel size lump on the left side of my belly button – does not hurt.
...
Hi Msulli,

I don't know what is going on. If you are going to take b12 it can't hurt to take the right b12s as a few of these things could be b12 related and most b12 supplements won't do the trick. A full b-complex would be better than just a couple of b vitamins. Zinc can help the body heal.The muscle spasms sound like you are short on potassium. Did they test for your potassium level? If I had these things going on I would work my way up to 16 grams (16,000mg) of vitamin C per day on the off chance it could help wityh your immune funtioning. Some vitamin E might help. With the docs puzzled we have to look at things that they wouldn't think of or try. So boosting the immune system is one approach. Doing a better selection of vitamins can help that. All these things are just general but [possibly could help. If you are interested in trying write back and I will tell you which supplements might work best for helping build up yiour body.

[Unregistered]

I am sorry you are going through all of this. This sounds like Morgellons.

It will be difficult to find medical help, since most MD's do not know anything about this. There are a few docs around who have been treating this, but there are not many. A naturopathic doctor may be a good bet.

Please visit:
http://morgellons-sanctum.org/
and
http://www.morgellons-disease-resear...Message-Board/
and
http://morgellons-research.org/

These websites have great support and treatment recommendations. Most recommendations are for natural products, and you can start helping yourself right away. You may also be able to find a morgellons doc near you by posting the question on the froum.
You mentioned DSP.. if its the same one I am thinking about, you can buy DSP products here:
http://www.s-m-g.org/dsp/

These products have been helpful for Morgellons symptoms.

[MSulli33]

I have been sick all day and just had a bowel movment and there are worms in my stool. Should I go to the ER or can I wait to talk to my doctor on Monday. Not sure is this is the cause of all my syptoms or not. I have never had this happen before and am somewhat horrifed and scared.