June 17th, 2009 06:38 PM #1Junior Member
- Join Date
- Jun 2009
- United States
Possible Eosinophili Esophagitis
Recently, my 3 1/2 year old son's ENT and GI Specialists stated that he most likely has Eosinophilic Esophagitis based on an endoscopy done by his ENT, who has been seeing my son for laryngomalacia. After my son's last (third) operation, the ENT stated his airway was clear but he found white "lumps" in his esophagus and took biopsies of it. The results showed 45-50 eosinophils per HPF. I've been confused with this new prognosis since I've never noticed my son dealing with any of the symptoms that those with EE have. However, he has had occasional diarrhea and vomiting, which I attribute to the flu; failure to "thrive" (his height is in the 3rd percentile); stridor (laryngomalacia); and cyanosis "blue spells" (cause is still unknown to his ENT and my son has had neurological testing with normal results, but the "spells" occur when he's really angry and crying). These past 2 days, I've taken him to an allergist, who tested him for 40+ food allergies, and to the radiologist for an upper GI, both came back normal. Maybe it's environmental which I doubt and I know it's not prescriptions/medications since he hasn't taken anything. The GI wants him on fluticasone, which I have not filled yet and the EE Specialist at the children's hospital is booked until August. I've been trying to find an answer or other possibilites, but to no avail.
Any suggestions on what it could be or what's causing it?
I appreciate your help.