Herpes Misdiagnosis... what next?

[Emely]

Hello,
I was doing a diagnosis of herpes search and ran across your story. I too think I was misdiagonised aswell. I was 15 and had a boyfriend that I was sexually active with and when I had an outbreak of awful, painful sores on and in my vagina I was taken to a doctor and immediately told that I had genital herpes and given the same medication as you. Unfortunately I was living with my aunt and did not have health insurance so I wasnt able to go back for a follow up and/or hear the results of the culture. Its now over 10 years later, and I never continued the Valtrex treatment, have had a child (vaginaly) and (sorry to be so blunt) lots of "rough" sex, all without another "outbreak." I am 99% certain that I was misdiagnosed and absolutely pi**ed too because I went through all the same issues that you did. The now ex told everyone (it only makes him look bad too though because we do have a child together!) and I had to deal with all the comments, regection, even worries from gfs ("I dont think its good for you too used my chapstick, eyeliner, etc. !)
Bottomline, the doctors should have better follow through with their patients! ITS BAD MEDICAL CARE AND BUSINESS PRACTICE!
Maybe my cooky mother isnt so crazy afterall when she says the docs and pharmacutical companies are in cahoots to get us to take their meds for a lifetime!!!!

So sorry to hear this has happend to others!!!


Take Care!

I wanted to ask you how long did it take valtrex to clear up whatever you had??? Please get back to me asap

[Ayla]

To the original poster of this thread. Sorry to hear what you went through and all for naught. You've asked our opinion and here is mine.

What is done is done. Take this as a life lesson. You cannot undo the mental anguish, but you learned something. The medical profession is imprecise at best, do not expect people to look out for you when it comes to your health. You have a responsibility to yourself to make sure to stay on top of situations, especially when going through a health crisis. People make the grave mistake of placing all their power in a doctor's hands like they are some type of Gods and thinking they will be on top of things. In this situation it would have been in your best interest to call the physician directly if you didn't hear back from him, thus taking control of the situation and exerting your best interests. There is nothing wrong with doing that.

I am not trying to make you into the bad guy, but doctors are harried, they are sometimes careless and it's up to you be your own advocate and follow-up. Unfortunately, that's our broken healthcare system but it also makes you a responsible person to do this.

When I go to a doctor's office, I make sure to get their email address and to ask if they will answer me if I write. I ask for all my test results and keep them on file. More than that though, any health crisis you have in the future you should make sure to research as best you can on the internet as well, so that you are not at the mercy of physicians that are so often wrong. I have seen so many people misdiagnosed it's not funny and frankly I place little stock in what a doctor has to say—but that is me.

It's unfortunate that you carried this stigma with you for many years, but you need to see where you failed yourself and not do that in the future. The whole lawsuit thing, forget it. It's not worth it. Yes, he screwed up but yes, you screwed up too. I'd move on. Best of luck.
Ayla
MorgellonsDiseaseAwareness.com