"Bone pain", muscle pain, fatigued

[LINENUP]

I think my doctors have given up on me. I have no motivation, not depressed, bone ache, muscle pain, to the point of debilitation. I've had my blood and urine tested dozens of times, have heard the word "normal" until I'm sick of it; have been diagnosed with low blood pressure, the result of overmeds for high BP earlier; have actually had Dengue fever about 2 years ago, often feel like I did then, but no fever; arthritis, don't think so, have no joint pain; depression, have taken meds for "anxiety", but don't have the symptoms of depression; gout, taken the meds; the latest is Epstein-Barr. Have had constant body pain for about 5 years. Had spinal fusion about 10 years ago - L4-L5-S1. Height, 5-10; weight, about 190; 62 years old. Apparently, there is no treatment for Epstein-Barr, so they want to treat the symptoms. They tell me that EB often causes chronic fatigue syndrome, and is very similar to chronic mononucleosis. I don't really believe it. Have taken more vitamins than I care to list, including high doses of magnesium oxide, St. John's wort, tons of vitamin C, have also gone for months with no vitamins at all. No apparent difference. Am apparently allergic to fluoride, as in toothpaste. Causes multiple sores on my gums and inner cheeks, and edema of the jaw and tongue. Would someone please tell me what the heck is wrong with me? Am I nuts? That seems to be about the only available illness remaining.

A few notes::; the idea that Chronic Fatigue being caused by Epstein Barr is a pretty out-dated concept - so that shows me that your PCP doesn't have a clue about the treatment or etiology of CFS.

Magnesium oxide is pretty worthless , it has no "bio-availability" moving to a quality magnesium like UltraMag or MagChloride would be a much better choice.

Did they check your Vitamin D3 levels? Very important for magnesium and calcium issues. D3 is also very involved in immune function, also D3 comes up as a cause of "myalgia", you can google this.

I would also consider looking at a very reasonable non-invasive test from Traceelements.com, this could be very helpful.

Fluoride is a poison (regardless of popular opinion), so I am not surprised by your body's reaction to it. Fluoride pushes magnesium out of the way, if you research it, you will find it has no business in our water supplies or dental products or in Teflon coated cookware.

[acuann]

A few notes::; the idea that Chronic Fatigue being caused by Epstein Barr is a pretty out-dated concept - so that shows me that your PCP doesn't have a clue about the treatment or etiology of CFS.

I have heard that EB is often found in CFS patients...could you post a bit more info on the etiology of CFS and recent findings? I was under the impression that they don't have a clue what causes it. If you could share what you know I'd appreciate it for my patients with CFS.

Best wishes
DOM

[LINENUP]

I have heard that EB is often found in CFS patients...could you post a bit more info on the etiology of CFS and recent findings? I was under the impression that they don't have a clue what causes it. If you could share what you know I'd appreciate it for my patients with CFS.

Best wishes
DOM

My comment refers to much of the ignorance found in CFS (I suffered/suffer with it). It often is "blanketed" in simple terms, when in reality it is a complex situation. It is my belief that this occurs just to give some answer even if it is wrong.

Viruses such as HHV6 and cytomegleo can be much more debilitating than EB. However in my situation I developed joint pain, muscle pain with a sore throat and many mental changes, that has been attibuted to a protozoa infection that I beleive is b. hominis, I also had an ascaracis infection. In my research so many pathogens can create this symptomology that it is difficult to "pin" it on one pathogen (any search about a specific pathogen will usually cross over to other pathogens in terms of symptomology)

I think that CFS should be labeled as chronic infection syndrome as much of the symptoms can be attributed towards the body harboring infections = it is the immune reaction that is causing much of the other problems such as disturbances in the HPA axis and immune dysregulation that CFS researchers find.

One thing I would note is that environmental conditions are supporting many of the infections such as toxic environmental poisons (household, pesticides, herbicides etc), heavy metals such as mercury and nutritional challenges such as magnesium and vitamin D deficiencies just to name a few.

By the way (note for Acuann) I was finally dx'd correctly by TCM after many tries, I was dx'd as damp-heat on the qi level and prescribed Three Nut Concoction w/ S36, LI4, LIV3 PC6, SP4, REN4 REN6 and utilizing Coptis Chinesis to eradicate protozoas, we will see how this goes.

[acuann]

By the way (note for Acuann) I was finally dx'd correctly by TCM after many tries, I was dx'd as damp-heat on the qi level and prescribed Three Nut Concoction w/ S36, LI4, LIV3 PC6, SP4, REN4 REN6 and utilizing Coptis Chinesis to eradicate protozoas, we will see how this goes.

Very interesting - thanks for your post! As I was reading it I thought about the TCM diagnosis of pathogens getting "lodged" in the interior organs and meridians. Often it is at a deep level, the "qi" level you reported. This is a very effective treatment for chronic infections like CFID and Hepatitis and HIV/AIDS.

Seems like your practitioner is using Chinese herbs to help clear the pathogens and the damp heat, while using acupuncture to help move Qi and fortify the body. Hope this helps your symptoms!

Do you have the Chinese pin yin name for Three nut concoction?

Best wishes
DOM

[LINENUP]

san ren tang -thanks for your encouraging post.

[mikeandecd]

I do not want to scare you, but bone pain can be a symptom of a rare disease. You have many of the same symptoms my husband had and he thought he was losing his mind too - all the docs just seemed to dismiss him or simply scratch their heads. His symptoms kept worsening until it got truly serious before he had an MRI that showed multiple lymph nodes and a bone scan that showed osteoporosis - but ultimately he was diagnosed at a 'teaching, research hospital' with a rare disease called Erdheim-Chester Disease. Not many docs have heard of it, so they do not know what to look for, but bone pain (not muscle) can be a defining symptom for ECD. Also a bone marrow biopsy can help determine, or at least rule out most cancers. Be proactive with docs and insist they do a bone scan. Ask the docs what are your White Blood Count, Red Blood Count and don't settle for 'normal'. If you want more info on ECD Google the name and it will send you to sites where you can learn about it and the symptoms. Good Luck!

mikeandecd

[statementz]

Have you ever considered looking into Alternative medicine? I would suggest doing some research on alternative treatments and go from there. Knowledge is power and the more you know about your body and how to take care of it the better equipped you will be in finding a solution to your ailments. So many people depend on the Doctor to cure them; most people just do not do the research that is needed to actually know what is going on in their own body. This could be a big mistake.

Here is something for you to read - it is a start. The Ozone Therapy is really interesting, also Food that Heal and there is so much more to look into, like Homeopathy. Like the site says "Educating instead of Medicating".

For serious ailments always seek professional help, but always educate yourself so you can go to them with good questions and with some knowledge of what is happening in your body. If traditional doctors have been unable to help - find a good alternative doctor to get you on the road to Health.

Take care of yourself; you are the primary person in caring for your body.


http://www.curezone.com/faq/q.asp?a=28,589&q=76
http://www.answers.com/topic/holistic-health?cat=health
http://www.shirleys-wellness-cafe.com/philo1.htm

[86nw]

Have you had your vitamin D levels checked? Low vitamin D could easily cause your symptoms. I had low vitamin D for years and had the same symptoms you have and all my labs came back normal until someone finally checked Vitamin D and saw it was low. I took prescription strength Vit D for 6 months and the symptoms got better. If your Vit D is normal there is one other thing I know to look at. Myositis. This is a autoimmune disorder that shows up in people over 50 usually, and women most.
Hope this helps. Hang in there, you are not imagining this. Just because the doctors don't know why you are having these symptoms, it does not mean you are not having the symptoms.

[DiMarc]

First of all everthing you mentioned is what 1000's of people have. You have Lyme Disease. Good Luck, and God Bless

[Unregistered]

have you checked into ion channelopathies? they can be genetic in nature but have something to do with the way sends the nerve signals between cells for example variations in the level of sodium, calcium and or potassium in and out side of the muscle cells.. found out I have a potassium channelopathy that cause pain in muscles exhaustion and clouded sensory issues (sensory Overload?)