"Bone pain", muscle pain, fatigued

[gdo24]

I think my doctors have given up on me. I have no motivation, not depressed, bone ache, muscle pain, to the point of debilitation. I've had my blood and urine tested dozens of times, have heard the word "normal" until I'm sick of it; have been diagnosed with low blood pressure, the result of overmeds for high BP earlier; have actually had Dengue fever about 2 years ago, often feel like I did then, but no fever; arthritis, don't think so, have no joint pain; depression, have taken meds for "anxiety", but don't have the symptoms of depression; gout, taken the meds; the latest is Epstein-Barr. Have had constant body pain for about 5 years. Had spinal fusion about 10 years ago - L4-L5-S1. Height, 5-10; weight, about 190; 62 years old. Apparently, there is no treatment for Epstein-Barr, so they want to treat the symptoms. They tell me that EB often causes chronic fatigue syndrome, and is very similar to chronic mononucleosis. I don't really believe it. Have taken more vitamins than I care to list, including high doses of magnesium oxide, St. John's wort, tons of vitamin C, have also gone for months with no vitamins at all. No apparent difference. Am apparently allergic to fluoride, as in toothpaste. Causes multiple sores on my gums and inner cheeks, and edema of the jaw and tongue. Would someone please tell me what the heck is wrong with me? Am I nuts? That seems to be about the only available illness remaining.

[gdo24]

BTW, I have also had x-rays of my back, showed some arthritis; have almost constant terrible right wrist joint pain, although MOVING the wrist produces no pain, I can "pop" the wrist back into place, sort of like cracking your knuckles; have had sonograms, test for Lyme disease. Please help me! I'm hurting. I'm apparently the healthiest person with constant pain that I've seen.

[gdo24]

I see that no one wants to tackle this one. I'm beginning to think it's just in my head. My symptoms don't exactly match anything I've seen on this website. In particular, I have no pain, no obvious symptoms of depression. Can't someone take a stab at it?

[Tootsie]

Im going to have to come back to u on this one, there is a natural remedy that is brill for helping ache's/pains.............i take it but threw box out & put tabs in jar.

My Pain consultant recomended that i take them.

I have TN (trigeminal neuralgia) it doesnt kill that but helps bone/joint pain all over.....after using it for a short while i found a big improvement, wouldnt do with out it now !

Also take cod liver oil capsuals !

Sorry i cant tell u whats wrong with u, but u will find doctors try to treat symptoms and sometimes u never get to root cause !

I'll get back to u !

[alibat]

have you checked with your doctor if you may have fibromyalgia rheumatica. This condition is difficult to diagnosed and can cause chronic muscle pain,fatigue and difficulty sleeping.

[Tootsie]

Im going to have to come back to u on this one, there is a natural remedy that is brill for helping ache's/pains.............i take it but threw box out & put tabs in jar.

My Pain consultant recomended that i take them.

I have TN (trigeminal neuralgia) it doesnt kill that but helps bone/joint pain all over.....after using it for a short while i found a big improvement, wouldnt do with out it now !

Also take cod liver oil capsuals !

Sorry i cant tell u whats wrong with u, but u will find doctors try to treat symptoms and sometimes u never get to root cause !

I'll get back to u !

Remember now .....Glucosamine Sulphate Tablets......this is a natural remedy.......ive found its great for improving all-round ache's & pains......still not a cure but deffinately helps !

Hope u feel better soon !

[PAIN101]

HI there,
I don't have any suggestions for your conditions but I know what you are going through. I don't think it is just in your head. I have constant pain. The worst in my legs and feet. Extreme pain that makes it hard to function. I am in the beginning of the diagnosis process. This only started six months ago so I am still waiting for the test results and specialist appointments. Hope you get some answers.

[BalaGroup]

I was diagnosed with FMS (Fibromyalgia Syndrome) MANY years ago, and my symptoms are quite similar to yours, except worse. It's not life-threatening, but it is certainly life-altering, and I had to leave my professional after 20 years. I would recommend that you find a good Rheumatologist, who diagnoses and treats arthritis and other diseases of the joints, muscles and bones. The Arthritis Foundation published a book a few years ago about Fibromyalgia, and there are many other publications on this subject, as well as information on the web. Good luck and God bless...

[PAIN101]

Thank you for your response. I went to see a Rhuematologist yesterday. He thinks that my symptoms are to wide spread and I don't get any relife with Vicodan and percocet so he thinks it might be a nervous system problem and is going to refer me to Nuerologist. I have sharp pins and needles feeling in my feet,legs, and around my spine. I have also had changes in my mental status I am confused sometimes and forget things. I was curious if you had these symptoms with FMS.

[acuann]

gdo24 and Pain101,
I would get another lyme test, from either Bowen or IGenex labs. Lyme tests are notoriously poor, the two listed are supposed to be the most accurate. Chronic undiagnosed lyme can cause all of the symptoms you describe.

Have either of you tried acupuncture to help manage your pain? It can really help!

Best wishes
DOM