Sc sickle cell disease(another type?)

[MommyofCam]

Hello my two month old son camryn has sc sickle cell disease and i have yet to meet anyone with or anyone who knows anybody with sc sickle cell it is a milder form of sickle cell anemia i want to know what people have gone through with this form of sickle cell (sc sickle cell)Thanks soo much

[Unregistered]

My eleven year old was dignosted with SC Disease when he was 2 days old. He was placed medication for the first four years of his life of which he had to take twice a day. The purspose of placing him on antibotics was to boost his immune system. I must say that by the grace of GOD my son has not been hospitalized nor have he had any pain crisis.

SC Disease is the mildest case of sickle cell anemia and doctor's will treat your child as if he/she had the full blown sickle cell disease.

I would HIGHLY recommend that you google: (Sickle-Cell Disease) and read up on it. You see when my son was born there wasn't much study done on his condition so my family and I participated in a study at a hospital.

The S stands for sickle and the C identifies the trait that either parent carries.

Hopefully, my feedback has encourged you and has helped with insight on SC Disease.

God Bless....

[Unregistered]

Oh yeah, I just thought I would also add that if my child ever acquired a fever over 101.1 he had to be seen for procautionary purposes. Over all my family and I have been truly BLESSED by the BEST. Recommendation to you would be just ensure that you align your family with a peditration that knows about sickle cell anemia/sickle cell disease.

The google link I referred you to should give you listings of all the vaccations that will help your child build his/her immune system up. Most doctors and hospitals treat children with SC disease with the care that they would administer to sickle cell anemia.

I know just speaking from first hand experience in the beginning it might seem overwhelming but once you get a grasp on the terminology and understand exactly what is transpiring with your child's immune system than it'll become clearer for you. Just know it's nothing you nor the child's father did.

In some instances, what happens is your child may experience pain which is known as pain crisis. What happens is mostly everyone's blood cells are round however some of our kids blood cells are not round but rather in a S shape which cases pain when the cells try and go through the vains. You can even google SC Disease and read more in-depth.
May God Bless you and your family!

[Unregistered23]

Hi there--

I too have SC disease and thank God have only been hospitalized once which was when I was 13 (I am 34 now) and this is how they discovered I had SC disease. Every since then I have been relatively healthy. I do have pain issues after swimming though. My daughter has SS disease any my other one has SC. The doctors treat them both with the same regimen however I can clearly see that my SC child has less complications.

[Unregistered19]

Hello. My name is Cassandra. I grew up having sharp pains all of my life. It felt like needles were being poked all over my body where it hurt at. I would yell most of the time because it was aways intense.My pain start coming mostly when it is cold outside. Like today there is snow on the ground so I ache. I have to take pills so that the pain won't get worst. My smytoms is that I hurt alot. Where I'm hurting at will swell up. I also have Long Q-T Heart disease so I can only take Ibuprofen. When my pains come I miss days from college at a time. So cold leads to hurting and then swelling 4 me. I hope that you find your answers.

[andora]

Hello my two month old son camryn has sc sickle cell disease and i have yet to meet anyone with or anyone who knows anybody with sc sickle cell it is a milder form of sickle cell anemia i want to know what people have gone through with this form of sickle cell (sc sickle cell)Thanks soo much

i am 55years old and have sc disease. i did not have any symtoms as a child. i got ill for the first time at 21 years old when i was about to give birth to my first child. since then i have only had problems in pregnancy, and during the menopause. by he way is there anyone out there who is also going through the menopause and has sc disease. i need some advice and suport too.

[dmcb]

My daughter has SC and she is 6 years old. She has been hospitalized about 6 times in her life. She has had pneumonia/acute chest syndrome. The other hospializations were from different infections w/fever. She has been doing well that last 2 years, but now we are going through the pain crisis in the stomach and legs. It sounds like it just depends on the person with SC how severe it can be. You may want to get a hemotologist to your child. They will look for certain things that a regular pediatrician may miss, like checking for enlarged spleen, and be able to better understand blood tests. Good luck and God bless!

[tgs]

Hi. I'm 19 years old and I have SC sickle cell disease too. I've been hospitalized many times, so many that I stopped counting. I experience a lot of pain in my limbs and my spleen when it's cold or when I'm stressed out. It's also a good idea to stay dry. Getting caught in the rain or not drying off immediately after a swim can cause painful crisis. Most recently I've been experiencing infarcts in my eye vessels that have left me with two big permanent blind spots in my right eye. I've been told that SC is more mild than SS but that it has the tendancy to affect eyes. My advise is for your child to drink a lot of water and get a lot of rest and try not to stress.

[Mr. Roberts]

Good morning,

My son has the same thing he is 7 years old now and we had just one episode, due to dehydration. Other than that we make sure that he's hydrated and eating food that builds his blood count

Hello my two month old son camryn has sc sickle cell disease and i have yet to meet anyone with or anyone who knows anybody with sc sickle cell it is a milder form of sickle cell anemia i want to know what people have gone through with this form of sickle cell (sc sickle cell)Thanks soo much

[yermi]

Hi my name is Helen and I have SC sickle cell. I'm 31 now and since I'm 13 I haven't had a pain crisis, when I was a kid I had lots of pain crisis specially during cold weather or when I got wet or took a shower late. My recommendation is to keep your child from been wet or if in a cold weather keep him/her always cover and drink lots of water.

As one of the person mention SC does affect your vision for example I suffer of Glaucoma and had two surgery for that but on the first one I had a vessel stroke on my right eye because I had to have a blood transfussion before doing any type of surgery and my ophtalmologist didn't know that so it was another learning experience for me and one for you guys ALWAYS before any surgery go to a hematologist and even if he/she says no do have a blood transfussion.

God bless you!

Good morning,

My son has the same thing he is 7 years old now and we had just one episode, due to dehydration. Other than that we make sure that he's hydrated and eating food that builds his blood count