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  1. #1
    Join Date
    Sep 2007
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    Default Pins and Needles/Tingling All Over Body

    I have been suffering from all over body pins and needles/tingling, to include the eyeballs, ears, nose, face, head/hair, private areas, feet, hands, legs, stomach, back, arms, you name it, it effects my entire body. Is this neuropathy/paresthesia? Can it effect the skin crawling sensations that I have all over the body like I have. I have read it effects the feet, hands, legs, and arms, but not the entire body. Please help with any information. Thanks

    Darla

  2. #2
    Join Date
    Nov 2007
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    3

    Question Re: Pins and Needles/Tingling All Over Body

    I think it started when I got a sore back from overdoing yed work. I had a 2 inch diameter tingling spot about T-9 just left of the spine. It progressed to my entire upper back. I complained when I reached to get something and my upper back cramped up. The neurologist I was seeing for my (post lyme disease excessive daytime sleepiness/mild sort of narcolepsy) sleepines, sent me to physical therapy for a month. That did the trick. No more sharp crawling all over my back, but I started with vibrating in my lower legs. Next my thighs got prickly where pressure was applied. Pretty soon the pressure pricklies were from knees to neck. Then the "invisible mosquitoes with steel needle beaks" started stabbing me randomly. It gets worse starting around 3-5 pm. The neuro started me on LYRICA, which elimiinates the symptoms completely, but leaves me feeling like I smoked marijuana. Stupid, happy, don't care and will eat till I pass out. Have to wait until I finish work to take it. If the symptoms come on early and I have to take it, I have to leave work.

    I have seen the neuro, who I dumped cause he didn't listen to me and wouldn't consider anything other than the diagnosis he proclaimed,,,refused to do further testing..."you have to learn to live with this". NO FF ing way! I won't learn to live with something that I don't know what it is.
    I went to my primary care doc who treated me for neuro lyme. He did extensive blood tests, came up with nothing. My dose of lyrica continues to increase. started at 50mg and I'm up to 400.

    I went online to the UCLA medical site and got referred to a neuro across from the school. Barry Ludwig. He better be good, or he better refer me to someone who can figure this all out. On the 30 of this month, I see him.

    My brother, who has a HMO insurance, can't self refer like I can, and he went to UCLA on his own for a consult. They referred him to a UCLA graduate in the Kaiser system that could do the surgery, (post head injury) he needed. So HMO PPO, you can find a doctor who is open minded enough to figure things out. I won't stop until I am satisfied.

  3. #3
    Join Date
    Sep 2007
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    2

    Default Re: Pins and Needles/Tingling All Over Body

    How are you? I feel for you and your brother. I think I will die this way. No real answers. Depending on chiropractoc care at the moment, though seems that each day I feel worse. You are the first to contact me, and I wrote that some time ago, talk if you want, and let me know how you are, take care...

  4. #4
    Join Date
    Nov 2007
    Posts
    2

    Default Re: Pins and Needles/Tingling All Over Body

    Quote Originally Posted by Darla9905 View Post
    I have been suffering from all over body pins and needles/tingling, to include the eyeballs, ears, nose, face, head/hair, private areas, feet, hands, legs, stomach, back, arms, you name it, it effects my entire body. Is this neuropathy/paresthesia? Can it effect the skin crawling sensations that I have all over the body like I have. I have read it effects the feet, hands, legs, and arms, but not the entire body. Please help with any information. Thanks

    Darla


    I have been suffering from the same exact symptoms you mentioned above. I dont know what this is actually. Can anyone give info? thanks

  5. #5
    Join Date
    Aug 2008
    Posts
    13

    Default Re: Pins and Needles/Tingling All Over Body

    Quote Originally Posted by rico View Post
    I have been suffering from the same exact symptoms you mentioned above. I dont know what this is actually. Can anyone give info? thanks
    Did any of you find out what it was? And were you healed?

  6. #6
    thelastoftruenobility Guest

    Default Re: Pins and Needles/Tingling All Over Body

    You can't die . . . not until you figure out why. Why is the most important question there is. Don't die until you understand what's killing you ( killing sounds a bit melodramatic so lets go with ailing you )

  7. #7
    Unregistered Guest

    Default Re: Pins and Needles/Tingling All Over Body

    I get this aswell, i havent herd of anyone else with tingling all over over body until i came across this post. Do u drink much alcohol? I find that it has been particulary bad when i have consumed alcohol. I havent find a way of easing the smtoms which at some times are unbearable, diazapam helps but u wouldnt want to be relyin on this daily.
    Quote Originally Posted by Darla9905 View Post
    How are you? I feel for you and your brother. I think I will die this way. No real answers. Depending on chiropractoc care at the moment, though seems that each day I feel worse. You are the first to contact me, and I wrote that some time ago, talk if you want, and let me know how you are, take care...

  8. #8
    Unregistered Guest

    Default Re: Pins and Needles/Tingling All Over Body

    i get it aswell but only when i suddenly get hot. my doctors said its a rush of blood from going to a cold to a hot place. so i have to try and stay calm and not get angry alot. it helps me maybe it will help you guys. just stay cool and calm for as long as you can

  9. #9
    Join Date
    Mar 2010
    Posts
    18

    Default Re: Pins and Needles/Tingling All Over Body

    Quote Originally Posted by Darla9905 View Post
    I have been suffering from all over body pins and needles/tingling, to include the eyeballs, ears, nose, face, head/hair, private areas, feet, hands, legs, stomach, back, arms, you name it, it effects my entire body. Is this neuropathy/paresthesia? Can it effect the skin crawling sensations that I have all over the body like I have. I have read it effects the feet, hands, legs, and arms, but not the entire body. Please help with any information. Thanks

    Darla

    I have the same thing w/burning sensations also. I also have hives constantly. My doctor is going to test me for Lupus. Maybe you should be tested as well. You aren't alone, don't give up, and God bless.

  10. #10
    Unregistered Guest

    Default Re: Pins and Needles/Tingling All Over Body

    Quote Originally Posted by jessbestrong View Post
    I have the same thing w/burning sensations also. I also have hives constantly. My doctor is going to test me for Lupus. Maybe you should be tested as well. You aren't alone, don't give up, and God bless.
    My Dr. put me on Gabapentin. It helped take the edge off of the burning and itchyness