Congenital conditions

Any condition that you are born with such as birth defects or genetic diseases.

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  1. Smile Mobius and Poland Syndrome

    Hi there, I have unilateral aplasia of the Pectoralis Major, which sounds interesting but is surprisingly not. I don't have a left major pectoral...

    Started by jbrown‎, December 14th, 2006 03:29 AM
    3 Pages
    1 2 3
    • Replies: 24
    • Views: 20,203
    January 27th, 2013, 07:36 PM Go to last post
  2. New Member with Hereditary KLIPPEL-FEIL SYNDROME (KFS)

    Hello, I am new to this forum and would just like to introduce myself. But 1st, I would like to share a link to an online support group for...

    Started by KFS Gal‎, May 17th, 2007 05:46 PM
    2 Pages
    1 2
    • Replies: 17
    • Views: 16,713
    October 13th, 2012, 04:52 AM Go to last post
  3. Can prozac lead to birth defects?

    Hy, i just read an article on the web about prozac and birth defects and I would like to know if it's true that taking prozac during pregnancy can...

    Started by TonyF‎, March 27th, 2012 07:19 PM
    antidepressants, birth defect, pregnancy, prozac
    • Replies: 0
    • Views: 557
    March 27th, 2012, 07:19 PM Go to last post
  4. Husband newly diagnosed with KFS

    Hi, my husband is 27 and JUST got diagnosed with KFS today. I am absolutely floored after reading about this syndrome, its like the past 7 years are...

    Started by Unregistered‎, August 16th, 2011 05:21 AM
    • Replies: 0
    • Views: 1,513
    August 16th, 2011, 05:21 AM Go to last post
  5. My 2 year old is abnormally small

    I'm hoping to get some answers to this problem that my 2 year old son has. He is abnormally small for his age - small head, small trunk, small hands...

    Started by rmhoffman81‎, August 11th, 2011 10:51 PM
    • Replies: 1
    • Views: 1,387
    August 14th, 2011, 08:10 PM Go to last post
  6. I have KFS also

    I was born with KFS & Sprengels deformity.I am 31yrs.old now,i also have a 10yrs.old daughter. I was seen by doctors at Shriners in Tampa,FL.& am...

    Started by kfsshorty79‎, July 14th, 2011 10:55 PM
    • Replies: 0
    • Views: 1,581
    July 14th, 2011, 10:55 PM Go to last post
  7. Polands and Back Pain

    27 year old male w/ right side missing pec major. I am assuming it is polands, but with no hand deformities. As of the last year I am experiencing...

    Started by Unregistered‎, May 11th, 2011 06:06 AM
    • Replies: 1
    • Views: 1,169
    July 2nd, 2011, 09:58 AM Go to last post
  8. please help

    i have a question how can a baby with caudal regression syndrome kick its legs while still iside the mother if its missing part of its spine

    Started by kim64wilkins‎, July 15th, 2006 05:36 PM
    • Replies: 1
    • Views: 2,919
    June 15th, 2011, 02:50 PM Go to last post
  9. New member

    Hello all, I was diagnosed with KFS back in 2002 when I went in to the hospital to have 2 disc replaced in my neck....I actually had a bad disc,...

    Started by Bruiser‎, May 25th, 2011 07:15 PM
    • Replies: 0
    • Views: 1,174
    May 25th, 2011, 07:15 PM Go to last post
  10. I have KFS

    Hello my name Rodney Chaisson and I was born with KFS. It has been hard for me to talk to anyone about this.No one I talk to really understands what...

    Started by Rodney Chaisson‎, March 31st, 2006 03:29 AM
    2 Pages
    1 2
    • Replies: 14
    • Views: 8,929
    May 18th, 2011, 02:43 AM Go to last post
  11. Post Finding surgeons & others to treat Klippel-Feil

    Regarding a search for surgeons with an expertise in Klippel Feil Syndrome: Dr. Jens Chapman, orthopedic surgeon at University of Washington...

    Started by Unregistered‎, May 18th, 2011 02:16 AM
    expertise, kfs, klippel-feil syndrome, treatment
    • Replies: 0
    • Views: 1,671
    May 18th, 2011, 02:16 AM Go to last post
  12. Duplex kidney

    All my 3 children have duplex kidneys, although i dont need any info on this because i know all about it , my son was found to have protein in his...

    Started by XANDER‎, November 3rd, 2008 12:21 PM
    3 Pages
    1 2 3
    • Replies: 27
    • Views: 18,512
    April 7th, 2011, 11:23 PM Go to last post
  13. Exclamation Congenital PVJ Obstraction Uratro Pelvic to baby in pregnancy

    Hello Doctor, Greetings for the day!! I am in start of 6th month pregnant and just did my ultrascan 28th feb in which doctor indicated...

    Started by shamli1‎, March 5th, 2011 09:24 AM
    • Replies: 0
    • Views: 1,634
    March 5th, 2011, 09:24 AM Go to last post
  14. Genetic problem with wife

    hi i am male 33 and wife aged 23, she delived a female baby in mid of 8 th month. Baby dead. Doctor told that baby was dead because of genetic...

    Started by Unregistered‎, March 4th, 2011 06:13 AM
    • Replies: 0
    • Views: 1,042
    March 4th, 2011, 06:13 AM Go to last post
  15. I have Klipper Fiel Syndrome

    Hi, I have had a hard life, not happy childhood. I have been bullied, teasing by boys. I am deaf as well. I have speech problem but some people can...

    Started by Kym2010‎, April 30th, 2010 11:43 AM
    • Replies: 3
    • Views: 3,135
    February 18th, 2011, 03:37 AM Go to last post
  16. Question Mrs

    Does anyone know of any self help groups for people with First Arch Syndrome? The ones I know relate to children and not adults. Also I would...

    Started by julie sheahan‎, September 16th, 2010 03:34 PM
    • Replies: 0
    • Views: 1,448
    September 16th, 2010, 03:34 PM Go to last post
  17. Marfan.

    On an off I have been worried that I have it. My symptoms include, Long Fingers ( Although I don't pass the wrist and thumb tests) Long Limbs...

    Started by Unregistered‎, January 30th, 2007 03:21 AM
    2 Pages
    1 2
    • Replies: 10
    • Views: 7,945
    June 3rd, 2010, 05:01 AM Go to last post
  18. Patients with Alkaptonuria?

    I'm hosting a fundraiser that will donate money to the Alkaptonuria Society, and I know about the disease but I was hoping that I could have a direct...

    Started by Unregistered‎, May 20th, 2010 12:25 PM
    alkaptonuria, fundraiser, genetic disease
    • Replies: 0
    • Views: 1,985
    May 20th, 2010, 12:25 PM Go to last post
  19. Unhappy my baby born without soft spots

    my 10 month old daughter was born without soft spots on her head lately she has been screaming in pain. t tok her to doctors daid she was teething...

    Started by concernedmom‎, August 18th, 2006 03:09 AM
    • Replies: 9
    • Views: 19,244
    May 11th, 2010, 12:15 PM Go to last post
  20. Unhappy dandy walker syndrome

    my son 18 years of age now, was diagnosed with dandy walker syndrome when i was 7 months pregnant. he has some mild motor skill problems and migranes...

    Started by ang11‎, April 5th, 2010 03:33 AM
    • Replies: 0
    • Views: 2,334
    April 5th, 2010, 03:33 AM Go to last post

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