Rare diseases

Any disease affecting less than 200,000 Americans

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  1. Sore throat & scalp scabs

    When I was a kid, I had very bad sore throats that made me very ill. I was often on antibiotics and I was often very tired. I didn't like my school...

    Started by ROZ72‎, May 6th, 2013 08:55 PM
    • Replies: 0
    • Views: 88
    ROZ72
    May 6th, 2013, 08:55 PM Go to last post

  2. Question Gitelman's Syndrome, need advise

    I was diagnosed with Gitelmans 7mos.ago. I cannot find much information....I would love to chat with someone who also has this syndrome. Anything...

    Started by sam52‎, March 28th, 2009 06:55 PM
    2 Pages •
    1 2
    • Replies: 17
    • Views: 12,456
    Goldiegall
    April 9th, 2013, 09:46 PM Go to last post

  3. 47xxx syndrome

    Sir, My 18-year-old daughter has been diagnosed as suffering from 47xxx syndrome. I request your kind self to help me by providing information on...

    Started by I. Abbasi‎, March 16th, 2013 04:19 AM
    47xxx, meningitis
    • Replies: 0
    • Views: 39
    I. Abbasi
    March 16th, 2013, 04:19 AM Go to last post

  4. Buerger's Disease

    My sister (Leslie) has just been diagnosised w/Buerger's. She has stopped smoking (7-days). The ulcerated Big toe & area behind her pinky has not...

    Started by Unregistered‎, February 11th, 2011 04:09 AM
    • Replies: 2
    • Views: 1,659
    roanmountain
    January 5th, 2013, 01:29 AM Go to last post

  5. buerger's disease

    I have been diagnosed with buergers disease. Was wondering if any on else has it or has any other information on it for long term effects. I do not...

    Started by krisi479‎, February 15th, 2008 03:25 PM
    2 Pages •
    1 2
    • Replies: 12
    • Views: 8,802
    roanmountain
    January 5th, 2013, 01:18 AM Go to last post

  6. Serratia - Blood Disease

    If you have a pocket of this infection the size of an egg in your body and it busts.....how long would it be before you would die? Thank you for...

    Started by tgoodwater2002‎, December 18th, 2012 03:35 AM
    • Replies: 0
    • Views: 140
    tgoodwater2002
    December 18th, 2012, 03:35 AM Go to last post

  7. Serratia - Blood Disease

    My step dad has just past away on sat. night. He had this Serratia disease. He was diagnosed in march of this year. He had a pick line in for...

    Started by tgoodwater2002‎, December 18th, 2012 03:16 AM
    • Replies: 0
    • Views: 148
    tgoodwater2002
    December 18th, 2012, 03:16 AM Go to last post

  8. Exclamation Hashimoto's, Adrenal Problem, Lyme's or Mercury Poisoning?

    I'm going to scream. I can't take one more light consideration of this. I feel as though I'm falling apart and I'm tired of the presumption that I'm...

    Started by WatchTheWeatherChange22‎, March 14th, 2007 12:57 AM
    3 Pages •
    1 2 3
    • Replies: 21
    • Views: 37,079
    krivera88
    November 18th, 2012, 04:26 PM Go to last post

  9. HTLV-I myelopathy

    Hello, My name is Jamila. Im 21 years old. I have HTLV-I myelopathy. For the past 4 years I have been on prednisone and azathioprine. However,...

    Started by nikeskittles‎, October 21st, 2008 01:40 AM
    • Replies: 5
    • Views: 3,026
    AlvinBishop
    November 8th, 2012, 06:33 PM Go to last post

  10. Lemierre's syndrome

    Hi there! Does anyone have any experience with Lemierre's syndrome? I had an ear infection last year that turned into Lemierre's syndrome (a...

    Started by nomadchica‎, September 13th, 2007 04:48 PM
    2 Pages •
    1 2
    • Replies: 12
    • Views: 7,772
    nomadchica
    October 28th, 2012, 09:44 AM Go to last post

  11. Red face Htlv 1/11

    I have donated blood and after a month recieved a report mentioning that my blood was falsly positive either 1 or 2, HTLV. since I am a clean person...

    Started by smnsam‎, December 20th, 2007 07:23 PM
    • Replies: 6
    • Views: 7,384
    AlvinBishop
    April 17th, 2012, 03:54 PM Go to last post

  12. Neuralgic Amyotrophy

    Hello everybody, I'm a male, 42 years old, in good physical health, perfect height/weight ratio, and I was diagnosed with Bilateral Brachial...

    Started by ionv‎, April 2nd, 2012 08:33 AM
    • Replies: 0
    • Views: 531
    ionv
    April 2nd, 2012, 08:33 AM Go to last post

  13. muscular dystrophy

    I'm 25 years old, a Filipina. I think I have Emery-Dreifuss muscular dystrophy. I want to believe that I'll be able to live a normal life in a few...

    Started by leya_1026‎, July 14th, 2006 09:55 AM
    • Replies: 3
    • Views: 2,802
    BetsyBoop
    March 24th, 2012, 03:07 AM Go to last post

  14. q fever

    I was diagnost with q fever,im on meds,seeing dr. The shock is to great,im scared. Im also told by the dr. that ive been expose to Tuberculosis. Here...

    Started by plains123‎, February 26th, 2012 01:21 AM
    • Replies: 0
    • Views: 467
    plains123
    February 26th, 2012, 01:21 AM Go to last post

  15. Question Ross's Syndrome

    Has anyone heard of Ross's Syndrome? It is characterized by a tingling, burning, and tightening sensation under the skin that affects the...

    Started by sjr44‎, September 10th, 2006 07:29 AM
    4 Pages •
    1 2 3 ... 4
    • Replies: 32
    • Views: 31,985
    joricho
    January 18th, 2012, 01:34 PM Go to last post

  16. Spinocerebellar ataxia 14 - SCA14

    are there any treatment that seems to help? i hate going around and people are wondering if im drunk, and my pure cordination, im afraid i cant get...

    Started by hellonoone‎, November 14th, 2011 05:02 PM
    • Replies: 0
    • Views: 876
    hellonoone
    November 14th, 2011, 05:02 PM Go to last post

  17. Lemierre's Syndrome

    Hi there! I'm actually posting this to bring more awareness to this nasty disease that seems to be ALWAYS misdiagnoised! My little brother was...

    Started by sunflwz2‎, July 17th, 2008 05:30 PM
    • Replies: 1
    • Views: 2,426
    Annagbaby
    October 11th, 2011, 04:14 PM Go to last post

  18. Question Bullousa Pemphigoid

    Just wondering if anyone has heard of this? Blisters usually apperars on body, but in my case just my gums and inside of cheeks. Would love to hear...

    Started by susanne‎, August 16th, 2007 02:36 PM
    • Replies: 7
    • Views: 5,176
    CaptainLiquorice
    September 8th, 2011, 05:52 PM Go to last post

  19. shy-drager need help please

    hi everyone,i am new to this site.i hope someone can help with this.my dad has had shy-drager going on 8 years and his health has gone downhill...

    Started by scott47‎, October 27th, 2006 08:21 PM
    2 Pages •
    1 2
    • Replies: 11
    • Views: 14,632
    Unregistered
    August 1st, 2011, 05:04 AM Go to last post

  20. Charcot marie tooth

    My daughter is 10 she has CMT type, My daughter comes from a family of CMT suffers who are significantly effected , 2 members of the family have...

    Started by moonbubble‎, May 18th, 2011 08:38 PM
    • Replies: 1
    • Views: 1,825
    sureshqqqqq
    July 7th, 2011, 10:24 PM Go to last post
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