Better Medicine Forums

miyoshi mayopathy.

kartik kamal rana — Thu, 09 May 2013 17:50:39 GMT

Sir,

My cpk blood count is always above 5000
Cant climb stair
Not able to walk properly
Want to know the cure
I want my life back. Was a football player in age 21
And now cant walk properly in age 25. Save my life.

miyoshi mayopathy.

kartik kamal rana — Thu, 09 May 2013 17:47:34 GMT

Sir,
My name is kartik kamal rana. I am 25yr old. I am suffering from diste
Muscle distrophy i cant climb stairs and cnt walk properly now.
Want to know the cure. Please save my life. :(

low cd4,high cd8,very low immunity,many symtoms can't be dignosed!

weizhi001 — Thu, 09 May 2013 13:34:40 GMT

First ,sorry my poor english ,english is not my mother language.I try my best to describe these clearly.
I am 37 years old , male . i am very well on history.
On jan,2012, i suddenly fell ill ,it is just fatigue ,weakness,drowsiness,anepithymia.
After one weeks,I developed liver damage and i have very deep Urine�s color like tea�s for two weeks.
My jaundice last two weeks , i suspect i infected by like hiv,eb or htlv ,hhv6 other virus. maybe Mononucleosis-like.

On feb,2012, I start severy dry cough,very severe cough,all day and all night. it last 20 days until inject Cephalosporins. Then, I get Pneumonia.i thiner 10% than my normal weight in six month.i have so many symptom, so many so many. i am very upset,very weakness,very low immunity,very fatigue. after six month,i feel a little better.

In the past sixteen months,i see many doctors include Infectious disease specialists,Cancer experts,Blood disease specialist,but unluckily i can't find out what cause to my illness,
In the first six months, i have very severe symtoms, jaundice, severe dry cough,Pneumonia,very fatigue,emaciation,repeat flu,repeat herpes labialis and so on.
Now, i still has fatigue,gingivitis,colitis,giddy,glossitis and so on.
At the four month, i devleped Cervical lymph node.At the tweleve month, it is Hand eczema. At the fifteen month,Armpit lump.
My tongue,fingernail,skin has abnormal aspect, i attach these picture.
My eb,cmv,hav,hbv,hcv and so on is negative.,hiv-ab negative for fifteen month and hiv-rna is negative four times(roche cobas). My chlamydia Pneumonia iggi is postive, igg is 1.17(positive>1).
I came from china, some special virus can't detected(example: special hiv,htlv and so on).

I do four times cd4 count test on different hospital,cd4 is just 580(30%),890(34%),430(23%),1200(22%),cd8 is 760(35%),960(36%),650(34%),2000(35%). but i found very strange phenomenon. On flow-Cytometer ,my lymphocyte count is 5000.but on complete blood cell .my lymphocyte count is 2500. flow-cytomerter's value alomost twice complete blood cell, is it be related to my illness?

I do three times ferritin,it is 700ng/ml, 768ng/ml ,900ng/ml.
At fifteen month, i do iron test ,My serum Iron 35.60 umol/L (normal:8.8-32.4),my Tibc is 69.60 umol/L(normal:20-55).
My ldh is 222(normal: 110-220).
At the tweleve month, my il-6,cpr,esr,saa,pct is normal.
My ppd test is ++ (20mm),my tb-ab is positive.
My 1-3,b-d is 459ng/ml(normal:<10) on September last year , now is 72ng/ml.
My Chest CT is normal,Abdominal B ultrasound is normal.
My wbc,Neut,mono,plt is normal,but Mplt is 52.7%(normal:13-48%)
Add a sentence,before my upset ,i have excessive drinking and low-risk activities on massage,
I have Mild fatty liver.
I suspect virus infected like seronegative hiv,not only my symptoms,but also my iron overloaded,low b12 ,low vitamin d3,very high cd8,high nk.On the other hand ,i has clamydia Pneumonia ,its igg is positive.
I know that a precise diagnosis is diffucult by internat,but there is no way,You are experiential by these desease,i be tormented for 15 months,please help ,i was very preciated your help.

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Help !!! I just wanna know what's wrong already

Marinrose0912 — Wed, 08 May 2013 22:40:21 GMT

:( Hey I'm a 26 yo fem ... Ok so about a yr ago I started to experience where I felt spaced out .... Like everything was going on around n It was like dream like or if I was drunk or high or something .. But anyway I recently had a baby in sept and since then the symptoms have gotten worst it started with a tingling feeling in my face ... And then I started feeling off balance when I walk like I was going to fall or pass out .. And one day I had an episode when I looked up at something and the room looked like it was shaking back and forth I had to get a grip then I felt a rush from head to toe and I panicked I thought I was gonna pass out ...,I went to my dr he said it sounds like migraines but I doubt it .. Sometimes I can go all day everyday with these symptoms of off balance like my legs are being pulled down or I, being pushed backwards ... N when I walk like the floor is moving under me .... No one understands me they think I'm going crazy but I'm telling u this feeling r going on in my body ... On the outside u can't even tell ... And I've seen a neurologist n my ct scan blood test ... Scans for seizures all have been done n came back normal .. I have seen an ent n besides my nasal passage being a lil swollen everything was fine ... The only time I ever feel better is if I sleep long ...because when I don't sleep I feel worst .. Please if anyone knows anything or heard or had these symptoms plzz comment I feel like I'm alone no one understands how I feel I'm scared for my life .. My children .... N lately the episodes of a rush going thru my body have gotten worst I have to remind myself I'm not going to pass out ... Ok sorry this was so long ... Any advice ...

Flu or what?

Hjalmar3 — Wed, 08 May 2013 21:37:31 GMT

I just slept for more than 48 hours.. have had a sore throat all that time.. hurts to swallow..
I haven't eaten for more than 3 days.. other symptoms: fatigue, NO headaches, hot sweat on my forehead but just a couple times, a bit of chills so I stayed under blankets most of the time, slight feeling of nausea or dizziness after a few minutes out of bed..
Am I gonna die?

No menstrual period for 3 months; Not Pregnant.

Kaye22 — Wed, 08 May 2013 19:21:38 GMT

Hi, i'm 19 and i haven't got my period for 3 months now is that because i'm too fat? Or i drink cold water too much? Or not having a safe sex? Please help me. :( i'm really scared right now. i don't now whats happening to me, and by the way i'm having cramping. :(

Help!!! 21month old with abnormal blood testing - no one knows what is going on?

kmatt0430 — Wed, 08 May 2013 14:15:14 GMT

My son is now 21 months old. He was diagnosed with Type 1 Diabetes and Anemia in Februray. He has been on insulin and iron supplements ever since. He was also born with hip dysplasia and enlarged kidneys (but kidneys are now normal). My child just looks sick. He is pale with dark circles under his eyes and seems to stay fatigued. He sweats a LOT whenever he sleeps (i do not know if thi is a symptom). People are asking me if he was always this pale or if he's feeling ok??

About 2 weeks ago he fell and hit his head and began vomiting. I took him to the ER where they did a CT and it was fine. Sent us home and the vomiting continued throughout the week (I notified our endocrinologist at all times to keep Diabetes under control) by Friday we were unable to get rid of the ketones and we were admitted in the hospital for 4 days. No one really could figure out what is going on. They did notice that his iron level is low and he has a poor appetite. (blood tests to follow) so they issued further testing at the Mayo Clinic.

I do not have the results from the Mayo Clinic except that he tested negative for Sickle Cell and Chrohn's Disease and that his Ferratin level was a 6.

I do have blood labs from the evening he hit his head and we were in ER. You will see elevated WBC, RBC and RDW CV and low MCV, MCH, MCHC.

MEASUREMENT RESULT RANGE
WBC 19.10 3.70-13.20
RBC 5.75 3.70-5.30
HGB 9.2 10.5-13.5
HCT 33.2 33.0-39.0
CV 57.7 70.0-86.0
MCH 16.0 23.0-31.0
MCHC 27.7 31.0-37.0
Platelet Count 375 192-486
RDW CV 18.9 11.4-13.9
**All neutrophils, lymhocytes, etc were normal

My biggest questions are if it is cancer related, bone marrow disorder, or a blood disorder? Since the Mayo Clinic results said they could not rule out an abnormality it makes me very nervous that it is not just Iron Deficiency Anemia. Any input is appreciated!!

Thanks!
Worried Momma!

Help Me Please :(

Kaye22 — Wed, 08 May 2013 11:29:22 GMT

Hi, I'm kaye 19 years old. Im having a problem with my menstrual cycle, the last time i had a menstrual period was 3 months ago, first i
Thought i was pregnant but i'm not, and now i'm having a fever every night 2days now and i really don't know whats wrong with me and i
hope you can help me. Because i'm really scared right now.

Not having a menstrual period for 3 months now.

Kaye22 — Wed, 08 May 2013 11:24:19 GMT

Hi, Im kaye 19 years old, im not having my period 3 months now and i really don't know why i'm not even pregnat or what so, and i'm having fever every night. i really want to know whats wrong with me.

gum swelling (local)

nazanin — Wed, 08 May 2013 07:58:09 GMT

I have a post and core which is about 3 years old on my lower left 2nd premolar. the root was RCT before and was quite poor. few days ago I did a composite filling on the opposite tooth (upper left 2nd premolar). since then I felt pressure on my lower teeth and after few days swelling. there is a small dull pain. my guess is root fracture since the pain arises when I bite. or can it be fungal infection since I have 5 other crowns?

painful undiagnosed joint condition?

mkrulezz — Wed, 08 May 2013 02:12:02 GMT

I'm seventeen and for several years now I've been dealing with severe joint pain. It comes and goes, usually two weeks at a time, and during those two weeks every joint in my body has a dull and achy pain. It's gotten to the point where I've had to stop running and it's even difficult for me to walk and write sometimes. I've had countless blood tests done, and every time they have come back negative for Lyme's disease. They also don't think it's arthritis, because there is no swelling. Based on the fact that these are my only symptoms, what could I possibly have? I'm getting another blood test done soon so if the results change I'll post them, I just want to figure out what's going on so I can get it treated properly :(
thank you!

Unable to get diagnosis

rapatil_rtg — Tue, 07 May 2013 14:23:03 GMT

My mother age 67 was suffering from headache since from Jan 2013. She went to local doctor, who has given some painkillers. After a week he referred us to ENT. ENT specialist gave her some medicines of cough and cold plus acidity medicines. But headache continued, so he advised us for neurologist. Then we went to neurologist. He advised for CT scan and Thyroid test in Feb 2013. We did it, reports were normal. So he gave some medicines. With these medicines she was not comfortable, headache continued. So she went to MBBS general physician in March 2013. He gave some tablets like vertin and pain killers. But no effect, then he advised us to meet orthopedic. Then we went to orthopedic, he suggested for neck Xray. We did it, it was normal, again he gave some painkillers. But still headache was there, she was having feeling of vomiting, her diet was reduced and she became very weak. On 19^th April 2013 we admitted her in hospital because her headache was continued and she was unable to walk as she was very weak. On 20^th April her headache was severe. Doctor took her for MRI1.5 test. Because of severe pain she was not stable and radiologist was not able to take images, so he called anesthesia specialist. After anesthesia they took the images but after 3 hours she has a seizure and immediately she has been shifted to ICU. She was unconscious for 24 hours. After that she opened the eyes but she was unable to recognize the persons and she was continuously speaking some irrelevant matter. We shocked. Till then MRI report came, but radiologist said report is abnormal. But he is unable to find the abnormality. Then neurologists came they also said its challenging and difficult case. Finally they draw the conclusion that her sodium level is down (119). They started sodium correction. For 2 days there was no improvement in her condition. After 2 days little improvement was there, that she started recognizing us. From ICU she shifted to room. And now she shifted to home, but her diet intake is very poor, delirium is there and she can not stand, walk herself. She vomits diet. Doctor is not giving any remedies over this. We went to big hospital also. There also doctor is not giving answer. What can be the problem? Every doctor says, case is difficult and complicated. But what is the complication? and what is the difficulty? no one is answering.

I can't figure out whats wrong with me should i see a doctor?

Spunkygirl1989 — Mon, 06 May 2013 21:12:55 GMT

Well I'm 24 years old I have problems with my left hand,arm and face going numb for 3-5 minutes sometimes it can just come out of no where and lately my left arm is a lot weaker then my right same with my left leg and my left eye is this something I should see a doctor about or should I not worry about it.. Any suggestions as to what it may be would really help thanks.

Sore throat & scalp scabs

ROZ72 — Mon, 06 May 2013 20:55:18 GMT

When I was a kid, I had very bad sore throats that made me very ill. I was often on antibiotics and I was often very tired. I didn't like my school doctor at all (he frightened me) and I'd only ask to see him if I felt really bad. Whilst being checked out again by this school doctor (I was about 12 years old) he suddenly looked very worried one day after seeing my throat again and he immediately checked my head for any scabs. He asked me if I had found any scabs on my scalp as it was very important to tell him as it was the symptom of something very rare that needed to be treated. I lied to him and said that I had found nothing whereas in the morning before seeing the doctor I found 2 or 3 scabs on my scalp when I was brushing my hair. I never told him or anyone about this as he had completely frightened me. Today (nearly 30 years on) I still think about this. I had my tonsils taken out when I turned 18 and I feel a lot better today though I always feel so tired and wonder if there is a link to this old story.
Could I have some advice on this, I would be very grateful, thank you.

Severe Period Pain? Fainting, vomiting, tingling? PCOS?

Loza595 — Mon, 06 May 2013 14:07:38 GMT

Hi there,

I really need some help with what's been going on whenever i get my period.

Ever since i got my first period when I was 12, i have experienced severe pain everytime. The first time i fainted and i have fainted about 4 times since then, but not recently. On the first day of my period i usually get severe cramps and also vomit practically everytime i get it. The cramps and pain last for about 4-5 hours and usually i have to resort to lying in bed and taking painkillers which doesn't help that much. I also usually break out in a cold sweat and the pain in my stomach sort of comes in waves.

My last period was one of the worst i have had. When the pain started, unfortunately i was on the bus home and i began sweating and went very pale and had an excruciating pain in my stomach. I could tell i was going to be sick so i got off and ended up vomiting in the bathroom of a shopping centre and felt very ill. I called my mum to come pick me up and when we were driving home, the cramps continued and i was in tears because of the pain. I also had this weird tingling/ pins and needles in my hands and legs for about 30 mins in the car which i have never had before. When i got home i went to bed and suddenly became very cold and was shivering in bed� the pain went after about 3 hours but it was really bad while it lasted.

I am also thinking i may have PCOS� i have acne, excess body hair and very irregular periods (as long as 50 days and as short as 20). Do you think you could help me out? What may i have and how can it be fixed? I am thinking about going to the doctor next week to get a diagnosis� what should i say to them about what i have been experiencing?

Sorry for the lonf post hahaa, just really need sone help! Thanks :D